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Involving research participants in a pan-European research initiative: the EPAD participant panel experience. ...
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Involving research participants in a pan-European research initiative: the EPAD participant panel experience ...
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Gregory, S.; Bunnik, E. M.; Callado, A. B.; Carrie, I.; De Boer, C.; Duffus, J.; Fauria, K.; Forster, S.; Gove, D.; Knezevic, I.; Laquidain, A.; Pennetier, D.; Saunders, S.; Sparks, S.; Rice, J.; Ritchie, C. W.; Milne, R.. - : Apollo - University of Cambridge Repository, 2020
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Abstract:
Abstract: Background: Including participants in patient and public involvement activities is increasingly acknowledged as a key pillar of successful research activity. Such activities can influence recruitment and retention, as well as researcher experience and contribute to decision making in research studies. However, there are few established methodologies of how to set up and manage participant involvement activities. Further, there is little discussion of how to do so when dealing with collaborative projects that run across countries and operate in multiple linguistic and regulatory contexts. Methods: In this paper we describe the set-up, running and experiences of the EPAD participant panel. The EPAD study was a pan-European cohort study with the aim to understand risks for developing Alzheimer’s disease and build a readiness cohort for Phase 2 clinical trials. Due to the longitudinal nature of this study, combined with the enrolment of healthy volunteers and those with mild cognitive impairments, the ...
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Keyword:
At-risk; Cohort; European; Involvement; Participant panel; Readiness; Research Article
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URL: https://dx.doi.org/10.17863/cam.58650
https://www.repository.cam.ac.uk/handle/1810/311557
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LEGAL STATUS OF THE PARTICIPANTS IN THE LAWSUIT IN THE ECONOMIC PROCEEDINGS ; ПРАВОВЕ СТАНОВИЩЕ УЧАСНИКІВ ПОЗОВНОГО ПРОВАДЖЕННЯ В ГОСПОДАРСЬКОМУ СУДОЧИНСТВІ
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In: Наукові праці Національного авіаційного університету. Серія: Юридичний вісник «Повітряне і космічне право»; Том 2, № 55 (2020); 163-170 ; Scientific works of National Aviation University. Series: Law Journal "Air and Space Law"; Том 2, № 55 (2020); 163-170 ; Научные труды Национального авиационного университета. Серия: Юридический вестник "Воздушное и космическое право»; Том 2, № 55 (2020); 163-170 (2020)
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Problemlagen geflüchteter Integrationskursteilnehmender: Bedarfe und Nutzung von Migrationsberatungsangeboten
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In: 3-2020 ; BAMF-Kurzanalyse ; 13 (2020)
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Fluchtspezifische Faktoren im Kontext des Deutscherwerbs bei Geflüchteten: Familienkonstellation, Gesundheitsstand und Wohnsituation
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In: 4-2020 ; BAMF-Kurzanalyse ; 14 (2020)
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Involving research participants in a pan-European research initiative: the EPAD participant panel experience
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Coding Discourse Using Distributed Communicative Principles
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In: Honors Scholar Theses (2020)
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L’identité numérique du locuteur dans les échanges professionnels en ligne : le cas du forum médical `ibinfirmiers.com`/ib
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In: Langage et société, N 170, 2, 2020-05-20, pp.129-146 (2020)
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Concepts of Ethics in Applied Linguistics Research ; Conceitos de ética na pesquisa em Linguística Aplicada
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In: Revista Horizontes de Linguistica Aplicada; Vol. 19 No. 2 (2020); 118-136 ; Revista Horizontes de Linguistica Aplicada; v. 19 n. 2 (2020); 118-136 ; 2237-0951 ; 1677-9770 ; 10.26512/rhla.v19i2 (2020)
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