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Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
In: Research outputs 2014 to 2021 (2021)
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“You felt like a prisoner in your own self, trapped”: The experiences of Aboriginal people with acquired communication disorders
In: Research outputs 2014 to 2021 (2021)
Abstract: Purpose: Aboriginal Australians are under-represented in brain injury rehabilitation services despite a high incidence of both stroke and traumatic brain injury in this population. This study aimed to explore the experiences of Aboriginal Australian adults with acquired communication disorders (ACDs) after brain injury for the first time to inform the development of accessible and culturally secure service delivery models. Methods and materials: Semi-structured interviews were undertaken with 32 Aboriginal people who had experienced a brain injury resulting in ACDs (aged 35–79 years) and 18 family members/carers across Western Australia. Thematic analysis identified common themes across participants. Results: Overall themes related to communication (both related to the communication disorder and general healthcare interactions), health and social contexts, recovery, and support, being away from family and country, knowledge and beliefs about brain injury, and follow-up. Conclusions: An increase in healthcare staff’s appreciation of the health and social contexts of Aboriginal people after brain injury is needed in order to improve communication with Aboriginal patients and the ability to offer accessible rehabilitation services. Ongoing support is required, with cultural identity noted as key to ensuring cultural security and ultimately recovery. Involvement of family and other Aboriginal people in recovery processes, as well as access to relevant Aboriginal languages and proximity to ancestral lands is central. Implications for rehabilitation Acknowledgment of cultural identity and strengths through involvement of extended family and Aboriginal Hospital Liaison Officers, access to language and proximity to country all central to rehabilitation planning for Aboriginal people after brain injury. Cultural security training for rehabilitation staff is recommended focusing on clear two-way communication skills to make medical information accessible for Aboriginal patients and to listen to patients’ concerns in a way that respects cultural context. Information regarding practical support and implications for ongoing management of life after brain injury (for the person and their family) is essential, and should supplement the medical-related information provided. Follow-up post discharge from hospital best facilitated through establishing contact with local Aboriginal community through Aboriginal community controlled health services, community elders, and Aboriginal health workers across organisations.
Keyword: Aboriginal; acquired communication disorders; aphasia; Brain injury; cultural security; Indigenous; rehabilitation; Rehabilitation and Therapy
URL: https://ro.ecu.edu.au/ecuworkspost2013/7445
https://ro.ecu.edu.au/cgi/viewcontent.cgi?article=8450&context=ecuworkspost2013
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3
Developing person-centred goal setting resources with and for people with aphasia: A multi-phase qualitative study
In: Research outputs 2014 to 2021 (2021)
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4
“Giving yourself some breathing room…”: an exploration of group meditation for people with aphasia
In: Research outputs 2014 to 2021 (2021)
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5
The ethics of patient and public involvement across the research process: Towards partnership with people with aphasia
In: Research outputs 2014 to 2021 (2021)
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6
Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
In: Research outputs 2014 to 2021 (2021)
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7
Treatment for improving discourse in aphasia: A systematic review and synthesis of the evidence base
In: Research outputs 2014 to 2021 (2021)
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8
Information, communication, advocacy, and complaint: how the spouse of a man with aphasia managed his discharge from hospital
In: Research outputs 2014 to 2021 (2020)
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9
Therapeutic relationships in aphasia rehabilitation: Using sociological theories to promote critical reflexivity
In: Research outputs 2014 to 2021 (2020)
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10
UK speech and language therapists' views and reported practices of discourse analysis in aphasia rehabilitation
In: Research outputs 2014 to 2021 (2020)
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11
A core outcome set for aphasia treatment research: The ROMA consensus statement
In: Research outputs 2014 to 2021 (2019)
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12
Communication access: Is there some common ground between the experiences of people with aphasia and speakers of English as an additional language?
In: Research outputs 2014 to 2021 (2018)
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13
A core outcome set for aphasia treatment research: the ROMA consensus statement
Wallace, Sarah J.; Worrall, Linda; Rose, Tanya. - : SAGE Publications, 2018
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14
Informal aphasia assessment, interaction and the development of the therapeutic relationship in the early period after stroke
In: Research outputs 2014 to 2021 (2017)
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15
Decolonizing speech-language pathology practice in acquired neurogenic disorders
In: Research outputs 2014 to 2021 (2017)
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16
“Ward Talk”: Nurses’ interaction with people with and without Aphasia in the very early period poststroke
In: Research outputs 2014 to 2021 (2016)
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17
“Hopeless, Sorry, Hopeless”: Co-constructing Narratives of Care With People Who Have Aphasia Post-stroke
In: Research outputs 2014 to 2021 (2015)
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18
Study Protocol: Missing Voices – Communication Difficulties after Stroke and Traumatic Brain Injury in Aboriginal Australians
In: Research outputs 2014 to 2021 (2015)
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19
Assess for success: evidence for therapeutic assessment
Hersh, Deborah; Worrall, Linda; O'Halloran, Robyn. - : Brookes Publishing, 2013
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20
SMARTER goal setting in aphasia rehabilitation
In: Aphasiology. - London [u.a.] : Routledge, Taylor & Francis Group 26 (2012) 2, 220-233
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