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Simple Search
Hits 1 – 8 of 8
1
Dysphagia following thermal burn injury: Clinical risk factors, anatomical and physiological characteristics and road to resolution and recovery
Anna Rumbach
. - : The University of Queensland, School of Health and Rehabilitation Sciences, 2011
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2
Online Assessment and Treatment of Childhood Speech, Language, and Literacy Disorders
Waite, Monique
. - : The University of Queensland, School of Health & Rehabilitation Sciences, 2010
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3
The Assessment and Treatment of Disordered Speech and Voice in Parkinson’s Disease Using a PC-based Telerehabilitation System
Gabriella Amalia Constantinescu
. - : The University of Queensland, School of Health and Rehabilitation Sciences, 2010
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4
Becoming familiar with competency-based student assessment: An evaluation of workshop outcomes
Ferguson, Alison
;
McAllister, Sue
;
Lincoln, Michelle
. - : Informa Healthcare, 2010
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5
Living Successfully with Aphasia
Kyla Brown
. - : The University of Queensland, School of Health and Rehabilitation Sciences, 2010
Abstract:
The onset of aphasia represents a significant and life-changing experience for many individuals. Common sequelae associated with aphasia include depression, social isolation, and loss of self-identity. Because of the importance of communication in relationships, the effects of aphasia also extend beyond the individual to impact on family. Although the negative consequences of aphasia on both individuals and family members are well documented, few studies have focused on positive examples of individuals living with aphasia. Recently, in an attempt to move away from “deficit” models and the emphasis on the negative impacts of aphasia, the concept of “living successfully with aphasia” has received some attention. Studies exploring the concept of living successfully with aphasia have identified positive adaptive factors and processes to inform clinical interventions and other community based services. The concept of living successfully with aphasia forms the focus of this thesis. The overall aim of the thesis was to expand on previous research and explore in depth the meaning of living successfully with aphasia. Specifically, the research aimed to explore the meaning of living successfully with aphasia from the perspectives of three participant groups: 1) individuals with aphasia, 2) speech-language pathologists, and 3) family members of individuals with aphasia. Lastly, it aimed to synthesise perspectives across these three groups. Qualitative semi-structured in-depth interviews were conducted with each participant group. A total of 25 individuals with aphasia, 25 speech-language pathologists, and 24 family members participated in the research. Participant generated photography was used as an adjunct to the interview process for participants with aphasia. Participants were asked to take photographs of what living successfully with aphasia meant to them and their photographs were used as stimuli for a second in-depth interview. Interviews from all three participant groups were transcribed verbatim and analysed using interpretative phenomenological analysis to identify themes of interest. Four core themes related to living successfully with aphasia emerged from the data of participants with aphasia: doing things; meaningful relationships; striving for a positive way of life; and communication. Analysis of transcripts from this participant group illuminated the complex, highly individualised nature of the concept. The use of participant generated photography was found to be a valuable method for enriching the data of participants with aphasia, and benefits and limitations of the method were identified and discussed. For speech-language pathologists, living successfully with aphasia was described in terms of eight core themes: participation and community engagement; communication; meaningful relationships; independence; acceptance and embracement of aphasia; self-esteem; happiness; and purpose or meaningfulness. A wide variety of factors were perceived to influence individuals’ abilities to live successfully with aphasia. These included support, acceptance, and understanding; personal factors; and speech-language pathology services. Analysis of transcripts from family member participants revealed seven themes related to the meaning of living successfully with aphasia. These themes were: involvement in life; support for the person with aphasia; communication; family members’ own needs; putting life in perspective; focusing on and celebrating strengths and improvements; and experiences with services. Findings from family member data highlighted the importance of recognising family members’ needs and priorities alongside those of individuals with aphasia. A process of qualitative meta-analysis was used to synthesise findings from the three participant groups. This analysis allowed for exploration of congruencies and discrepancies across the groups, and led to the interpretation of findings at a higher level of abstraction. Seven over-arching themes that encapsulated data from across the groups arose from the meta-analysis process. These were: participation; meaningful relationships; support; communication; positivity; independence and autonomy; and living successfully with aphasia as a journey over time. Findings from the qualitative meta-analysis have clinical relevance and illuminate areas for further research. Overall, findings support the need for holistic, client-centred interventions, which consider communication in the broader context of an individual’s daily life and family relationships. The over-arching themes provide guideposts for clinicians in addressing life with aphasia on a client-by-client basis. Future research may focus on determining how speech-language pathologists are currently addressing each of these themes in practice, as well as assessing clients’ levels of satisfaction with services in these areas. Longitudinal research that explores the changes in perspectives of individuals over time from the onset of aphasia may also add a valuable layer to findings from the current studies. In conclusion, although the experiences of each individual or family are unique, the stories and themes contained within this thesis offer a message of hope to those beginning their journey of life with aphasia. It is our hope that this research will challenge researchers and clinicians to work in partnership with individuals with aphasia and their families to ensure that intervention programs are working towards positive and meaningful outcomes that will one day enable all of those with aphasia to share the view that they are living successfully.
Keyword:
11 Medical and Health Sciences
;
aphasia
;
interpretative phenomenological analysis
;
participation
;
psychosocial
;
qualitative
;
speech-language pathology
;
successfully living
URL:
https://espace.library.uq.edu.au/view/UQ:217525/s4052629_phd_abstract.pdf
https://espace.library.uq.edu.au/view/UQ:217525/s4052629_phd_totalthesis.pdf
https://espace.library.uq.edu.au/view/UQ:217525
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6
The input processing, cognitive linguistic and oro-motor skills of children with speech difficulty
Dodd, Barbara
;
McIntosh, Beth
. - : Informaworld, 2008
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7
Politics and complexity in intercultural fieldwork: The Vietnam experience
Whiteford, Gail Elizabeth
;
McAllister, Lindy
. - : Blackwell Science, 2007
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8
Male students and practitioners in speech pathology: An Australian pilot study
McAllister, Lindy
;
Neve, Ben
. - 2005
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