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Communication Challenges Faced by Spanish-Speaking Caregivers of Children with Medical Complexity: a Qualitative Study
In: J Racial Ethn Health Disparities (2021)
Abstract: BACKGROUND: Communication between caregivers and healthcare providers is important in the delivery of high-quality healthcare for children with medical complexity (CMC). Hispanic children face many challenges in access to healthcare services. Our objective was to describe the communication challenges faced by Spanish-speaking parents with limited English proficiency (SSP-LEP). METHODS: This was a qualitative study of 70 children of Spanish-speaking caregivers, enrolled in a complex care program of a tertiary care children’s hospital in North Carolina. Secondary source data were abstracted logs of care coordination tasks maintained by the program’s two bilingual care coordinators for a median observation period of 45 months, and complemented by data from care coordinator interviews. Data were entered and coded in ATLAS.ti. Using thematic content analysis and an iterative process, we identified recurrent themes related to communication challenges of Spanish-speaking caregivers. RESULTS: Median age of children was 5 years; 51% were girls; 97% had Medicaid; and 3% were uninsured. Seven children died during the observation period. Three major themes were identified as follows: (1) caregivers faced many communication challenges primarily because of language barrier. (2) Multiple factors at caregiver, provider, and system levels, in addition to language barrier, contributed to communication challenges. (3) Communication challenges had serious consequences for CMC. These consequences were lessened by bilingual coordinators. CONCLUSION: SSP-LEP face unique communication challenges resulting in negative impact on the healthcare of their CMC. Bilingual coordinators can help improve communication between SSP-LEP and their healthcare providers. Interventions to address communication challenges of Spanish-speaking caregivers are warranted. SUPPLEMENTARY INFORMATION: The online version contains supplementary material available at 10.1007/s40615-021-01161-x.
Keyword: Article
URL: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8483426/
https://doi.org/10.1007/s40615-021-01161-x
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2
Individual differences in learning the regularities between orthography, phonology and semantics predict early reading skills
In: J Mem Lang (2020)
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3
The Visual Array Task: A Novel Gaze-Based Measure of Object Label and Category Knowledge
In: Dev Sci (2020)
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4
Differential Activation of the Visual Word Form Area During Auditory Phoneme Perception in Youth with Dyslexia
In: Neuropsychologia (2020)
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5
BDNF genotype and tDCS interaction in aphasia treatment
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6
Transcranial direct current stimulation to treat aphasia: Longitudinal analysis of a randomized controlled trial
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7
Interoperability of Medication Classification Systems: Lessons Learned Mapping Established Pharmacologic Classes (EPCs) to SNOMED CT
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8
Predicting brain activation patterns associated with individual lexical concepts based on five sensory-motor attributes
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9
Dialect Awareness and Lexical Comprehension of Mainstream American English in African American English-Speaking Children
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10
Distributional structure in language: Contributions to noun–verb difficulty differences in infant word recognition
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11
Anatomy is strategy: Skilled reading differences associated with structural connectivity differences in the reading network
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12
Toddlers Activate Lexical Semantic Knowledge in the Absence of Visual Referents: Evidence from Auditory Priming
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13
The Science of Reading and Its Educational Implications
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14
The Role of Left Occipitotemporal Cortex in Reading: Reconciling Stimulus, Task, and Lexicality Effects
Mano, Quintino R.; Humphries, Colin; Desai, Rutvik H.. - : Oxford University Press, 2012
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15
Noun–noun combination: Meaningfulness ratings and lexical statistics for 2,160 word pairs
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16
The relationship between phonological and auditory processing and brain organization in beginning readers
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17
Rules vs. Statistics: Insights from a Highly Inflected Language
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18
White Students Reflecting on Whiteness: Understanding Emotional Responses
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19
Connecting Cues: Overlapping Regularities Support Cue Discovery in Infancy
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20
Letting Structure Emerge: Connectionist and Dynamical Systems Approaches to Cognition
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