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A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR-Befriending (SUPERB) for post-stroke aphasia
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions
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Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
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‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia
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Simpson, A.; McVicker, S.; Behn, N.; Moss, B.; Goldsmith, K.; Northcott, S.; Monnelly, K.; Marshall, J.; Hilari, K.; Flood, C.; Thomas, S.. - : Wiley, 2021
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Abstract:
Background: Stroke and aphasia can have a profound impact on people’s lives, and depression is a common, frequently persistent consequence. Social networks also suffer, with poor social support associated with worse re- covery. It is essential to support psychosocial well-being post-stroke, and examine which factors facilitate successful adjustment to living with aphasia. Aims: In the context of a feasibility randomized controlled trial of peer-befriending (SUPERB), this qualitative study explores adjustment for people with aphasia in the post-acute phase of recovery, a phase often neglected in previous research. Methods & Procedures: Semi-structured interviews were conducted with 20 people with aphasia and 10 significant others, who were purposively sampled from the wider group of 56 people with aphasia and 48 significant others. Interviews took place in participants’ homes; they were analysed using framework analysis. Outcomes & Results: Participants with aphasia were 10 women and 10 men; their median (interquartile range— IQR) age was 70 (57.5–77.0) years. Twelve participants had mild aphasia, eight moderate–severe aphasia. Signif- icant others were six women and four men with a median (IQR) age of 70.5 (43–79) years. They identified a range of factors that influenced adjustment to aphasia post-stroke. Some were personal resources, including mood and emotions; identity/sense of self; attitude and outlook; faith and spirituality; and moving forward. Significant others also talked about the impact of becoming carers. Other factors were external sources of support, includ- ing familial and other relationships; doctors, nurses and hospital communication; life on the ward; therapies and therapists; psychological support, stroke groups; and community and socializing. Conclusions & Implications: To promote adjustment in the acute phase, hospital staff should prioritize the human- izing aspects of care provision. In the post-acute phase, clinicians play an integral role in supporting adjustment and can help by focusing on relationship-centred care, monitoring mental health, promoting quality improvement across the continuum of care and supporting advocacy.
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Keyword:
P Philology. Linguistics; RC Internal medicine
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URL: https://openaccess.city.ac.uk/id/eprint/25884/1/Adjustment%20in%20aphasia%20IJLCD%202021.pdf
https://doi.org/10.1111/1460-6984.12616
https://openaccess.city.ac.uk/id/eprint/25884/
https://openaccess.city.ac.uk/id/eprint/25884/7/Adjustment%20in%20aphasia%20IJLCD%202021%20Supplement.pdf
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"Loneliness can also kill:" a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others
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"For them and for me": a qualitative exploration of peer befrienders' experiences supporting people with aphasia in the SUPERB feasibility trial
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SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia
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Delivering group support for people with aphasia in a virtual world: experiences of service providers
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Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
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Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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In: Research outputs 2014 to 2021 (2021)
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial
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Adjustment with aphasia after stroke: a pilot feasibility randomised controlled trial for supporting wellbeing through peer-befriending (SUPERB)
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Treatment for improving discourse in aphasia: a systematic review and synthesis of the evidence base
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UK speech and language therapists’ views and reported practices of discourse analysis in aphasia rehabilitation
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Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
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