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Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy.
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In: Orphanet journal of rare diseases, vol 17, iss 1 (2022)
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International Faculty's Perspectives on Organizational Culture and Management: A Three-Step Action Plan ...
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International Faculty's Perspectives on Organizational Culture and Management: A Three-Step Action Plan ...
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Proceedings of the International Conference on "Minority languages spoken or signed and inclusive spaces" ...
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Proceedings of the International Conference on "Minority languages spoken or signed and inclusive spaces" ...
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Members of the Polish Language Council on the Problems of Linguistic Diversity and Linguistic Inclusion in Poland
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In: Social Inclusion ; 9 ; 1 ; 63-74 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Towards Inclusion in Spanish Higher Education: Understanding the Relationship between Identification and Discrimination
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In: Social Inclusion ; 9 ; 3 ; 81-93 ; Inclusive Universities in a Globalized World (2022)
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Social Inclusion and Multilingualism: Linguistic Justice and Language Policy
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In: Social Inclusion ; 9 ; 1 ; 1-4 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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What Constitutes a Local Public Sphere? Building a Monitoring Framework for Comparative Analysis
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In: Media and Communication ; 9 ; 3 ; 85-96 ; Spaces, Places, and Geographies of Public Spheres (2022)
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Two Linguas Francas? Social Inclusion through English and Esperanto
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In: Social Inclusion ; 9 ; 1 ; 75-84 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Relational Communication Spaces: Infrastructures and Discursive Practices
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In: Media and Communication ; 9 ; 3 ; 28-39 ; Spaces, Places, and Geographies of Public Spheres (2022)
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Multilingualism and Social Inclusion in Scotland: Language Options and Ligatures of the "1+2 Language Approach"
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In: Social Inclusion ; 9 ; 1 ; 14-23 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Towards Portuguese Sign Language Identification Using Deep Learning
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CLIL as an inclusive approach. a didactic proposal to attend to diversity
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Understanding cyberslacking intention during Covid-19 online classes: An fsQCA analysis
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How can we recruit more men of African or African-Caribbean ancestry into our research? Co-creating a video to raise awareness of prostate cancer risk and the PROFILE study
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Abstract:
Background Men of African ancestry are at increased risk of developing prostate cancer (PrCa) compared to men from other backgrounds. The PROFILE study aims to understand whether genetic information can better target who needs PrCa screening. PROFILE has so far had difficulty reaching men of African or African -Caribbean ancestry to take part. In this involvement project we worked in partnership with a group of such men to co-create a video to raise awareness of PrCa risk amongst this community and promote participation in the study. Methods We recruited seven men of African or African-Caribbean ancestry who completed an initial survey on the Cancer Patients’ Voice platform. We then held an online discussion panel and maintained contact to encourage dialogue and planning of the video. Utilising a participatory approach, the ideas for the video were decided in collaboration with the panel who held expert knowledge of various communities and understood the messages that would best resonate and engage with other men of the same origins. Once the video had been edited and finalised, two members of the group expressed interest in writing up the project and are listed as co-authors. Results The video in its entirety was driven by the panel’s ideas. The choice of a barber shop setting; leading with a positive case study and highlighting the importance of men’s family members rather than a focus on scientific language, statistics or researchers were all features that were discussed and agreed upon by the panel. The men shared the video within their networks. It was placed on websites and promoted as part of a social media campaign during Black History Month. Conclusions Groups with the greater healthcare needs and the most to gain from advances in care and treatment can often be the most excluded from research participation. This is pertinent in PrCa research where men of African or African-Caribbean ancestry are at greater risk. The project gave equal power and decision making to the men and provides an example of successful inclusive involvement. The result was a unique approach to making a study video.
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Keyword:
Co-creation; Diversity; Inclusion; Patient and public involvement; Prostate cancer
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URL: http://dspace.stir.ac.uk/retrieve/1608890a-df8a-418b-858e-4e190fad1f39/s40900-022-00347-9.pdf https://doi.org/10.1186/s40900-022-00347-9 http://hdl.handle.net/1893/34243
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La inclusividad lingüística en la educación multilingüe de California: coexistencia de las variedades y registros de lengua para enriquecer el aula de inmersión dual
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Effects of Social Stories on Increasing Social Interaction and Engagement of Deaf and Hard of Hearing Students with Autism Spectrum Disorder in Inclusive Settings
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In: UNF Faculty Publications (2022)
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Welcoming and Inclusive Farmers Markets: A Community of Practice to Encourage Diversity, Equity, and Inclusion
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In: Outcomes and Impact Quarterly (2022)
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