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An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
In: Research outputs 2014 to 2021 (2022)
Abstract: Coordination of international aphasia research would minimise duplication of effort, support synergistic international activities across languages and multidisciplinary perspectives, and promote high-quality conduct and reporting of aphasia research, thereby increasing the relevance, transparency, and implementation of findings. The Collaboration of Aphasia Trialists (CATs) sought to develop an aphasia research agenda to direct future research activities, based on priorities shared by people with aphasia, family members, and healthcare professionals. Our established international research network spanning 33 countries contributed to this activity. Research literature reporting the priorities of stakeholders was reviewed and synthesized (phase 1). Representatives from Working Groups on Aphasia Assessment & Outcomes, Prognosis & Predictors of Recovery, Effectiveness of Interventions, and Societal Impact & Reintegration participated in a two-day research agenda-setting meeting. The CATs expert panel refined research objectives and identified constituent components of research and methodological developments required to address these research components. The objectives and research components were grouped into overarching themes (phase 2). The resultant list was then circulated to more than 180 CATs members for review, revision, and approval. Consensus on the final aphasia research agenda and roadmap was reached by CATs executive committee (phase 3). The expert panel identified five overarching research themes: (i) evidence-based interventions for people with aphasia, (ii) effective interventions to support those communicating with people with aphasia, (iii) cross-linguistic assessment and core outcomes for aphasia research, (iv) predictors of language recovery, and (v) clinical implementation of research findings. Within these broad themes, 30 research objectives and 91 individual aphasia research components were identified and sequentially ordered. This agenda builds on research priorities identified by people with aphasia and their families, and includes priorities of healthcare professionals and researchers, and will support the rehabilitation and recovery of people with aphasia. Our internationally relevant research agenda promotes rigor in methodology, considers international applicability, synergistic activities, and sharing of resources and expertise.
Keyword: agenda; Aphasia; Communication Sciences and Disorders; consensus; Medical Sciences; Medicine and Health Sciences; Neurosciences; priorities; research; Speech Pathology and Audiology
URL: https://ro.ecu.edu.au/ecuworkspost2013/11134
https://ro.ecu.edu.au/cgi/viewcontent.cgi?article=12140&context=ecuworkspost2013
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2
Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
In: Research outputs 2014 to 2021 (2021)
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3
Treatment for improving discourse in aphasia: A systematic review and synthesis of the evidence base
In: Research outputs 2014 to 2021 (2021)
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4
Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions ...
Monnelly, Katie; Marshall, Jane; Cruice, Madeline. - : Taylor & Francis, 2021
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions ...
Monnelly, Katie; Marshall, Jane; Cruice, Madeline. - : Taylor & Francis, 2021
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6
Development of a self-management intervention for stroke survivors with aphasia using co-production and behaviour change theory: An outline of methods and processes
In: PLoS One (2021)
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7
Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
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8
Delivering group support for people with aphasia in a virtual world: experiences of service providers.
Caute, Anna; Cruice, Madeline; Devane, Niamh. - : Taylor and Francis, 2021
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9
Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
Cruice, Madeline; Woolf, Celia; Caute, Anna. - : Informa UK Limited, 2021
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10
Creating a Theoretical Framework to Underpin Discourse Assessment and Intervention in Aphasia
In: Brain Sci (2021)
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11
Assessing Parent Behaviours in Parent–Child Interactions with Deaf and Hard of Hearing Infants Aged 0–3 Years: A Systematic Review
In: J Clin Med (2021)
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12
Assessing Parent-Child Interaction in Infant Deafness
In: Curr Opin Otolaryngol Head Neck Surg (2021)
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13
An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists.
In: Ali, Myzoon Soroli, Efstathia Jesus, Luis M. T. Cruice, Madeline Isaksen, Jytte Visch-Brink, Evy Grohmann, Kleanthes K. Jagoe, C. Kukkonen, Tarja Varlokosta, Spyridoula Hernández Sacristán, Carlos Rosell Clari, Vicent Palmer, Rebecca Martinez Ferreiro, Silvia Godecke, Erin Wallace, Sarah J. McMenamin, Ruth Copland, David Breitenstein, Caterina Bowen, Audrey Laska, Ann-Charlotte Hilari, Katerina Brady, Marian C. 2021 An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists. Aphasiology 1 21 (2021)
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14
UK speech and language therapists' views and reported practices of discourse analysis in aphasia rehabilitation
In: Research outputs 2014 to 2021 (2020)
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15
Establishing consensus on a definition of aphasia: an e-Delphi study of international aphasia researchers
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16
A core outcome set for aphasia treatment research: The ROMA consensus statement
In: Research outputs 2014 to 2021 (2019)
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17
Technology‐enhanced reading therapy for people with aphasia: findings from a quasi‐randomized waitlist controlled study
Caute, Anna; Woolf, Celia; Wilson, Stephanie. - : American Speech-Language-Hearing Association, 2019
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Technology-enhanced writing therapy for people with aphasia: results of a quasi-randomized waitlist controlled study
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19
Increasing the intensity and comprehensiveness of aphasia services: identification of key factors influencing implementation across six countries
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20
Reporting interventions in communication partner training: a critical review and narrative synthesis of the literature
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