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1
Precision communication: Physicians’ linguistic adaptation to patients’ health literacy
In: Sci Adv (2021)
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2
Employing computational linguistics techniques to identify limited patient health literacy: Findings from the ECLIPPSE study
In: Health Serv Res (2020)
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3
Challenges and solutions to employing natural language processing and machine learning to measure patients’ health literacy and physician writing complexity: The ECLIPPSE study
In: J Biomed Inform (2020)
Abstract: OBJECTIVE: In the National Library of Medicine funded ECLIPPSE Project (Employing Computational Linguistics to Improve Patient-Provider Secure Emails exchange), we attempted to create novel, valid, and scalable measures of both patients’ health literacy (HL) and physicians’ linguistic complexity by employing natural language processing (NLP) techniques and machine learning (ML). We applied these techniques to > 400,000 patients’ and physicians’ secure messages (SMs) exchanged via an electronic patient portal, developing and validating an automated patient literacy profile (LP) and physician complexity profile (CP). Herein, we describe the challenges faced and the solutions implemented during this innovative endeavor. MATERIALS AND METHODS: To describe challenges and solutions, we used two data sources: study documents and interviews with study investigators. Over the five years of the project, the team tracked their research process using a combination of Google Docs tools and an online team organization, tracking, and management tool (Asana). In year 5, the team convened a number of times to discuss, categorize, and code primary challenges and solutions. RESULTS: We identified 23 challenges and associated approaches that emerged from three overarching process domains: (1) Data Mining related to the SM corpus; (2) Analyses using NLP indices on the SM corpus; and (3) Interdisciplinary Collaboration. With respect to Data Mining, problems included cleaning SMs to enable analyses, removing hidden caregiver proxies (e.g., other family members) and Spanish language SMs, and culling SMs to ensure that only patients’ primary care physicians were included. With respect to Analyses, critical decisions needed to be made as to which computational linguistic indices and ML approaches should be selected; how to enable the NLP-based linguistic indices tools to run smoothly and to extract meaningful data from a large corpus of medical text; and how to best assess content and predictive validities of both the LP and the CP. With respect to the Interdisciplinary Collaboration, because the research required engagement between clinicians, health services researchers, biomedical informaticians, linguists, and cognitive scientists, continual effort was needed to identify and reconcile differences in scientific terminologies and resolve confusion; arrive at common understanding of tasks that needed to be completed and priorities therein; reach compromises regarding what represents “meaningful findings” in health services vs. cognitive science research; and address constraints regarding potential transportability of the final LP and CP to different health care settings. DISCUSSION: Our study represents a process evaluation of an innovative research initiative to harness “big linguistic data” to estimate patient HL and physician linguistic complexity. Any of the challenges we identified, if left unaddressed, would have either rendered impossible the effort to generate LPs and CPs, or invalidated analytic results related to the LPs and CPs. Investigators undertaking similar research in HL or using computational linguistic methods to assess patient-clinician exchange will face similar challenges and may find our solutions helpful when designing and executing their health communications research.
Keyword: Article
URL: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8186847/
http://www.ncbi.nlm.nih.gov/pubmed/33316421
https://doi.org/10.1016/j.jbi.2020.103658
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4
Perspectives of English, Chinese, and Spanish-Speaking Safety-Net Patients on Clinician Computer Use: Qualitative Analysis.
In: Journal of medical Internet research, vol 21, iss 5 (2019)
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5
Secure Messaging with Physicians by Proxies for Patients with Diabetes: Findings from the ECLIPPSE Study
In: J Gen Intern Med (2019)
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6
Perspectives of English, Chinese, and Spanish-Speaking Safety-Net Patients on Clinician Computer Use: Qualitative Analysis
Khoong, Elaine C; Cherian, Roy; Matta, George Y. - : JMIR Publications, 2019
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7
A Randomized Clinical Trial of Group Acupuncture for Painful Diabetic Neuropathy Among Diverse Safety Net Patients
In: Pain Med (2019)
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8
Language-concordant automated telephone queries to assess medication adherence in a diverse population: a cross-sectional analysis of convergent validity with pharmacy claims.
In: BMC health services research, vol 18, iss 1 (2018)
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9
Language-concordant automated telephone queries to assess medication adherence in a diverse population: a cross-sectional analysis of convergent validity with pharmacy claims ...
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10
Language-concordant automated telephone queries to assess medication adherence in a diverse population: a cross-sectional analysis of convergent validity with pharmacy claims ...
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11
The Next Frontier in Communication and the ECLIPPSE Study: Bridging the Linguistic Divide in Secure Messaging.
Schillinger, Dean; McNamara, Danielle; Crossley, Scott. - : eScholarship, University of California, 2017
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12
The Next Frontier in Communication and the ECLIPPSE Study: Bridging the Linguistic Divide in Secure Messaging.
Schillinger, Dean; McNamara, Danielle; Crossley, Scott. - : eScholarship, University of California, 2017
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13
Health Literacy, Health Care Utilization, and Direct Cost of Care Among Linguistically Diverse Patients with Type 2 Diabetes Mellitus
Doyle, Gerardine; Gibney, Sarah; Quan, Judy. - : SLACK Incorporated, 2017
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14
The Next Frontier in Communication and the ECLIPPSE Study: Bridging the Linguistic Divide in Secure Messaging
Schillinger, Dean; McNamara, Danielle; Crossley, Scott. - : Hindawi Publishing Corporation, 2017
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15
Automated Telephone Self-Management Support for Diabetes in a Low-Income Health Plan: A Health Care Utilization and Cost Analysis.
In: Population health management, vol 18, iss 6 (2015)
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16
Automated Telephone Self-Management Support for Diabetes in a Low-Income Health Plan: A Health Care Utilization and Cost Analysis
Quan, Judy; Lee, Alexandra K.; Handley, Margaret A.. - : Mary Ann Liebert, Inc., 2015
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17
Diabetes health information technology innovation to improve quality of life for health plan members in urban safety net.
In: Ratanawongsa, Neda; Handley, Margaret A; Sarkar, Urmimala; Quan, Judy; Pfeifer, Kelly; Soria, Catalina; et al.(2014). Diabetes health information technology innovation to improve quality of life for health plan members in urban safety net. The Journal of ambulatory care management, 37(2), 127 - 137. UC San Francisco: Retrieved from: http://www.escholarship.org/uc/item/3jw0n5sm (2014)
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18
ESL Participation as a Mechanism for Advancing Health Literacy in Immigrant Communities
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19
Diabetes Health Information Technology Innovation to Improve Quality of Life for Health Plan Members in Urban Safety Net
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20
Safety events during an automated telephone self-management support intervention.
In: Journal of diabetes science and technology, vol 7, iss 3 (2013)
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