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Addressing patients’ communication support needs through speech-language pathologist-nurse information-sharing: Employing ethnography to understand the acute stroke context
Cruice, M.; Jones, J.; Barnard, R. A.. - : Taylor and Francis, 2022
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2
Managing ongoing swallow safety through information-sharing: an ethnography of speech and language therapists and nurses at work on stroke units
Barnard, R. A.; Cruice, M.; Jones, J.. - : Wiley, 2022
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3
A Systematically Conducted Scoping Review of the Evidence and Fidelity of Treatments for Verb and Sentence Deficits in Aphasia: Sentence Treatments
Dipper, L.; Cruice, M.; Hickin, J.. - : American Speech-Language-Hearing Association, 2022
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4
Protocol for the development of the international population registry for aphasia after stroke (I-PRAISE)
In: Research outputs 2014 to 2021 (2022)
Abstract: Background: We require high-quality information on the current burden, the types of therapy and resources available, methods of delivery, care pathways and long-term outcomes for people with aphasia. Aim: To document and inform international delivery of post-stroke aphasia treatment, to optimise recovery and reintegration of people with aphasia. Methods & Procedures: Multi-centre, prospective, non-randomised, open study, employing blinded outcome assessment, where appropriate, including people with post-stroke aphasia, able to attend for 30 minutes during the initial language assessment, at first contact with a speech and language therapist for assessment of aphasia at participating sites. There is no study-mandated intervention. Assessments will occur at baseline (first contact with a speech and language therapist for aphasia assessment), discharge from Speech and Language Therapy (SLT), 6 and 12-months post-stroke. Our primary outcome is changed from baseline in the Amsterdam Nijmegen Everyday Language Test (ANELT/Scenario Test for participants with severe verbal impairments) at 12-months post-stroke. Secondary outcomes at 6 and 12 months include the Therapy Outcome Measure (TOMS), Subjective Index of Physical and Social Outcome (SIPSO), Aphasia Severity Rating Scale (ASRS), Western Aphasia Battery Aphasia Quotient (WAB-AQ), stroke and aphasia quality of life scale (SAQoL-39), European Quality of Life Scale (EQ-5D), lesion description, General Health Questionnaire (GHQ-12), resource use, and satisfaction with therapy provision and success. We will collect demography, clinical data, and therapy content. Routine neuroimaging and medication administration records will be accessed where possible; imaging will be pseudonymised and transferred to a central reading centre. Data will be collected in a central registry. We will describe demography, stroke and aphasia profiles and therapies available. International individual participant data (IPD) meta-analyses will examine treatment responder rates based on minimal detectable change & clinically important changes from baseline for primary and secondary outcomes at 6 and 12 months. Multivariable meta-analyses will examine associations between demography, therapy, medication use and outcomes, considering service characteristics. Where feasible, costs associated with treatment will be reported. Where available, we will detail brain lesion size and site, and examine correlations with SLT and language outcome at 12 months. Conclusion: International differences in care, resource utilisation and outcomes will highlight avenues for further aphasia research, promote knowledge sharing and optimise aphasia rehabilitation delivery. IPD meta-analyses will enhance and expand understanding, identifying cost-effective and promising approaches to optimise rehabilitation to benefit people with aphasia.
Keyword: Aphasia; data collection; Medical Sciences; Medicine and Health Sciences; Neurosciences; outcome assessment; protocol; registry
URL: https://ro.ecu.edu.au/ecuworkspost2013/11451
https://ro.ecu.edu.au/cgi/viewcontent.cgi?article=12457&context=ecuworkspost2013
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5
Protocol for the development of the international population registry for aphasia after stroke (I-PRAISE)
Ali, M.; Ben Basat, A. L.; Berthier, M.. - : Informa UK Limited, 2021
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6
An aphasia research agenda–a consensus statement from the collaboration of aphasia trialists
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7
Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
Hersh, D.; Scarth, L.; Bannister, J.. - : Informa UK Limited, 2021
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8
Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions
Monnelly, K.; Marshall, J.; Cruice, M.. - : Taylor and Francis, 2021
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9
Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
Boyle, M.; Botting, N.; Cruice, M.. - : MDPI, 2021
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10
Scoping opinion: Speech and language therapists' views on extending their role to the urgent ear, nose and throat pathway.
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11
A systematic review of language and communication intervention research delivered in groups to older adults living in care homes
Davis, L.; Botting, N.; Cruice, M.. - : Wiley, 2021
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12
Development of a self-management intervention for stroke survivors with aphasia using co-production and behaviour change theory: An outline of methods and processes
Wray, F.; Clarke, D.; Cruice, M.. - : Public Library of Science, 2021
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13
Assessing parent-child interaction in infant deafness
Curtin, M.; Herman, R.; Cruice, M.. - : Lippincott, Williams & Wilkins, 2021
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14
Delivering group support for people with aphasia in a virtual world: experiences of service providers
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15
Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
Marshall, J.; Moutou, C.; Caute, A.. - : Wiley, 2021
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16
Assessing Parent Behaviours in Parent-Child Interactions with Deaf and Hard of Hearing Infants Aged 0-3 Years: A Systematic Review
Herman, R.; Morgan, G.; Rodgers, L.. - : MDPI, 2021
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17
Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
In: Research outputs 2014 to 2021 (2021)
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18
An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
Ali, M.; Soroli, E.; Jesus, L.M.T.. - : Informa UK Limited, 2021
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19
Treatment for improving discourse in aphasia: a systematic review and synthesis of the evidence base
Dipper, L.; Marshall, J.; Boyle, M.. - : Informa UK Limited, 2020
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20
Establishing consensus on a definition of aphasia: an e-Delphi study of international aphasia researchers
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