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Hearing loss diagnosis provision of information and support: audiologist and parent perspectives
In: Journal of Early Hearing Detection and Intervention (2021)
Abstract: When a child is diagnosed with hearing loss, the parents are faced with many decisions that will impact their child’s future. This study aimed to obtain data to determine viewpoints on information being provided to parents of children with hearing loss from both audiologist and parent perspectives. Topics of information surveyed included information on modes of communication, Deaf culture, cochlear implants, emotional support, and state resources/laws. A survey was created and shared in Facebook groups for audiologists and parents of Deaf/hard of hearing children. The survey was completed by 91 audiologists and 111 parents. Audiologist and parent survey data was analyzed and compared to look for similarities, differences, and possible biases. The data obtained in the study showed that overall, information on the topics investigated is being provided to parents when their child is initially diagnosed with hearing loss. However, many parents felt that the information that was provided was insufficient; therefore, they did not feel confident in their decision-making process. Audiologists have the responsibility to provide parents with unbiased, extensive information for parents to successfully make informed decisions for their child. Provision of practical, comprehensive information and recommendations may lead to improved parent knowledge and confidence.
Keyword: American Sign Language (ASL); audiologist; Auditory Verbal Therapy (AVT); cochlear implant; counseling; Cued Speech; Deaf culture; hearing loss; Signed Exact English (SEE); Speech Pathology and Audiology; support; Total Communication
URL: https://digitalcommons.usu.edu/jehdi/vol6/iss2/6
https://digitalcommons.usu.edu/cgi/viewcontent.cgi?article=1153&context=jehdi
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