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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: The RELEASE database of aphasia after stroke
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In: Research outputs 2014 to 2021 (2022)
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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke
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WILLIAMS, Louise R.; ALI, Myzoon; VANDENBERG, Kathryn; WILLIAMS, Linda J.; ABO, Masahiro; Becker, Frank; BOWEN, Audrey; BRANDENBURG, Caitlin; BREITENSTEIN, Caterina; BRUEHL, Stefanie; COPLAND, David A.; CRANFILL, Tamara B.; DI PIETRO-BACHMANN, Marie; ENDERBY, Pamela; FILLINGHAM, Joanne; GALLI, Federica Lucia; GANDOLFI, Marialuisa; Glize, Bertrand; GODECKE, Erin; Hawkins, Neil; HILARI, Katerina; HINCKLEY, Jacqueline; Horton, Simon; Howard, David; JAECKS, Petra; Jefferies, Elizabeth; JESUS, Luis M. T.; Kambanaros, Maria; KANG, Eun Kyoung; KHEDR, Eman M.; KONG, Anthony Pak-Hin; KUKKONEN, Tarja; Laganaro, Marina; RALPH, Matthew A. Lambon; LASKA, Ann Charlotte; LEEMANN, Beatrice; LEFF, Alexander P.; LIMA, Roxele Ribeiro; Lorenz, Antje; MACWHINNEY, Brian; MARSHALL, Rebecca Shisler; MATTIOLI, Flavia; MAVIS, Iiknur; MEINZER, Marcus; NILIPOUR, Reza; NOE, Enrique; PAIK, Nam Jong; PALMER, Rebecca; PAPATHANASIOU, Ilias; PATRICIO, Brigida F.; MARTINS, Isabel Pavao; PRICE, Cathy; JAKOVAC, Tatjana Prizl; ROCHON, Elizabeth; ROSE, Miranda L.; Rosso, Charlotte; RUBI-FESSEN, Ilona; RUITER, Marina B.; SNELL, Claerwen; STAHL, Benjamin; SZAFLARSKI, Jerzy P.; THOMAS, Shirley A.; VAN DE SANDT-KOENDERMAN, Mieke; VAN DER MEULEN, Ineke; VISCH-BRINK, Evy; WORRALL, Linda; WRIGHT, Heather Harris; BRADY, Marian C.; COLLABORATORS, RELEASE
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In: ISSN: 0268-7038 ; EISSN: 1464-5041 ; Aphasiology ; https://hal.archives-ouvertes.fr/hal-03528818 ; Aphasiology, Taylor & Francis (Routledge), 2021, ⟨10.1080/02687038.2021.1897081⟩ (2021)
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Abstract:
Background: Collation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. Aim: To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Methods: Data were collated by systematically identifying existing, eligible studies in any language (>= 10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. Results: From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants' median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Discussion: Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.
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Keyword:
[SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie; Aphasia; Individual participant data; Rehabilitation reporting standards; Speech and language therapy; Stroke
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URL: https://hal.archives-ouvertes.fr/hal-03528818 https://hal.archives-ouvertes.fr/hal-03528818/file/BPH_Aphasiology_2021_Williams.pdf https://hal.archives-ouvertes.fr/hal-03528818/document https://doi.org/10.1080/02687038.2021.1897081
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Predictors of Poststroke Aphasia Recovery: A Systematic Review-Informed Individual Participant Data Meta-Analysis
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In: ISSN: 0039-2499 ; EISSN: 1524-4628 ; Stroke ; https://hal.archives-ouvertes.fr/hal-03277820 ; Stroke, American Heart Association, 2021, 52 (5), pp.1778-1787. ⟨10.1161/strokeaha.120.031162⟩ (2021)
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Sensitivity and specificity of an acoustic- and perceptual-based tool for assessing motor speech disorders in French: the MonPaGe -screening protocol
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In: ISSN: 0269-9206 ; EISSN: 1464-5076 ; Clinical Linguistics & Phonetics ; https://hal.archives-ouvertes.fr/hal-03099545 ; Clinical Linguistics & Phonetics, Taylor & Francis, In press, ⟨10.1080/02699206.2020.1865460⟩ (2021)
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Predictors of poststroke aphasia recovery: a systematic review-informed individual participant data meta-analysis
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Attention in post-lexical processes of utterance production: Dual-task cost in younger and older adults ...
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Attention in post-lexical processes of utterance production: Dual-task cost in younger and older adults ...
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sj-docx-1-qjp-10.1177_17470218211034130 – Supplemental material for Attention in post-lexical processes of utterance production: Dual-task cost in younger and older adults ...
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sj-docx-1-qjp-10.1177_17470218211034130 – Supplemental material for Attention in post-lexical processes of utterance production: Dual-task cost in younger and older adults ...
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Predictors of Poststroke Aphasia Recovery: A Systematic Review-Informed Individual Participant Data Meta-Analysis ...
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Attention in post-lexical processes of utterance production: Dual-task cost in younger and older adults
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In: Q J Exp Psychol (Hove) (2021)
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Predictors of Poststroke Aphasia Recovery A Systematic Review-Informed Individual Participant Data Meta-Analysis
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Attention in post-lexical processes of utterance production: dual-task cost in younger and older adults
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In: ISSN: 1747-0218 ; The quarterly journal of experimental psychology, Vol. 74, No 11 (2021) pp. 1852-1872 (2021)
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Sensitivity and specificity of an acoustic- and perceptual-based tool for assessing motor speech disorders in French: the MonPaGe-screening protocol
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In: ISSN: 0269-9206 ; Clinical Linguistics and Phonetics (2021) pp. 1-16 (2021)
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Neural dynamics of the production of newly acquired words relative to well-known words
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In: ISSN: 0006-8993 ; EISSN: 0006-8993 ; Brain Research ; https://hal.archives-ouvertes.fr/hal-02438366 ; Brain Research, Elsevier, 2020, 1727, pp.146557. ⟨10.1016/j.brainres.2019.146557⟩ (2020)
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MonPaGe, un outil de screening francophone informatisé d’évaluation perceptive et acoustique des troubles moteurs de la parole (dysarthries, apraxie de la parole
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In: ISSN: 0034-222X ; Rééducation orthophonique ; https://halshs.archives-ouvertes.fr/halshs-02504027 ; Rééducation orthophonique, Ortho édition, 2020, 281, pp.171-197 (2020)
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RELEASE: A protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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In: Research outputs 2014 to 2021 (2020)
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Age‐Specific Effects of Lexical–Semantic Networks on Word Production
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In: Cogn Sci (2020)
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RELEASE: a protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia
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