| 1 |
A core outcome set for aphasia treatment research: The ROMA consensus statement
|
|
|
|
In: Research outputs 2014 to 2021 (2019)
|
|
BASE
|
|
Show details
|
|
|
| 2 |
Family-centered care in aphasia: Assessment of third-party disability in family members with the family aphasia measure of life impact
|
|
|
|
BASE
|
|
Show details
|
|
|
| 3 |
A core outcome set for aphasia treatment research: the ROMA consensus statement
|
|
Wallace, Sarah J.; Worrall, Linda; Rose, Tanya; Le Dorze, Guylaine; Breitenstein, Caterina; Hilari, Katerina; Babbitt, Edna; Bose, Arpita; Brady, Marian C.; Cherney, Leora R.; Copland, David; Cruice, Madeline; Enderby, Pam; Hersh, Deborah; Howe, Tami; Kelly, Helen; Kiran, Swathi; Laska, Ann-Charlotte; Marshall, Jane; Nicholas, Marjorie; Patterson, Janet; Pearl, Gill; Rochon, Elizabeth; Rose, Miranda; Sage, Karen; Small, Steven; Webster, Janet. - : SAGE Publications, 2018
|
|
Abstract:
Background: A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the heterogeneous measurement of outcomes in aphasia treatment research and to facilitate the production of transparent, meaningful, and efficient outcome data. Objective: The Research Outcome Measurement in Aphasia (ROMA) consensus statement provides evidence-based recommendations for the measurement of outcomes for adults with post-stroke aphasia within phases I–IV aphasia treatment studies. Methods: This statement was informed by a four-year program of research, which comprised investigation of stakeholder-important outcomes using consensus processes, a scoping review of aphasia outcome measurement instruments, and an international consensus meeting. This paper provides an overview of this process and presents the results and recommendations arising from the international consensus meeting. Results: Five essential outcome constructs were identified: Language, communication, patient-reported satisfaction with treatment and impact of treatment, emotional wellbeing, and quality of life. Consensus was reached for the following measurement instruments: Language: The Western Aphasia Battery Revised (WAB-R) (74% consensus); emotional wellbeing: General Health Questionnaire (GHQ)-12 (83% consensus); quality of life: Stroke and Aphasia Quality of Life Scale (SAQOL-39) (96% consensus). Consensus was unable to be reached for measures of communication (where multiple measures exist) or patient-reported satisfaction with treatment or impact of treatment (where no measures exist). Discussion: Harmonization of the ROMA COS with other core outcome initiatives in stroke rehabilitation is discussed. Ongoing research and consensus processes are outlined. Conclusion: The WAB-R, GHQ-12, and SAQOL-39 are recommended to be routinely included within phases I–IV aphasia treatment studies. This consensus statement has been endorsed by the Collaboration of Aphasia Trialists, the British Aphasiology Society, the German Society for Aphasia Research and Therapy, and the Royal College of Speech Language Therapists.
|
|
Keyword:
Aphasia; Consensus; Core outcome set; Methodology; Recommendations; Stroke
|
|
URL: http://hdl.handle.net/10468/7246
https://doi.org/10.1177/1747493018806200
|
|
BASE
|
|
Hide details
|
|
|
| 4 |
A core outcome set for aphasia treatment research: the ROMA consensus statement
|
|
|
|
BASE
|
|
Show details
|
|
|
| 5 |
Perceived Benefits for Family Members of Group Participation by Their Relatives with Aphasia
|
|
|
|
BASE
|
|
Show details
|
|
|
| 6 |
"We just thought that this was Christmas": perceived benefits of participating in aphasia, stroke, and other groups
|
|
|
|
BASE
|
|
Show details
|
|
|
| 7 |
Goals and goal setting for people with aphasia, their family members and clinicians
|
|
|
|
In: Research outputs 2014 to 2021 (2014)
|
|
BASE
|
|
Show details
|
|
|
| 8 |
Goals and goal setting for people with aphasia, their family members and clinicians
|
|
|
|
BASE
|
|
Show details
|
|
|
| 13 |
The World Report on disability as a blueprint for international, national, and local aphasia services.
|
|
|
|
In: International journal of speech-language pathology, 15(1,): 106-112 (2013)
|
|
BASE
|
|
Show details
|
|
|
| 14 |
Reflection on the benefits and limitations of participant-generated photography as an adjunct to qualitative interviews with participants with aphasia
|
|
|
|
BASE
|
|
Show details
|
|
|
| 15 |
Third-party disability in family members of people with aphasia: a systematic review
|
|
|
|
BASE
|
|
Show details
|
|
|
| 16 |
A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia
|
|
|
|
BASE
|
|
Show details
|
|
|
| 17 |
"Making a good time": the role of friendship in living successfully with aphasia
|
|
|
|
BASE
|
|
Show details
|
|
|
| 18 |
The World Report on Disability as a blueprint for international, national, and local aphasia services
|
|
|
|
BASE
|
|
Show details
|
|
|
|
|
