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A core outcome set for aphasia treatment research: The ROMA consensus statement
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In: Research outputs 2014 to 2021 (2019)
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Family-centered care in aphasia: Assessment of third-party disability in family members with the family aphasia measure of life impact
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Abstract:
More than 50 years of research has demonstrated the profound effect that aphasia has on people with the condition and their family members. In the International Classification of Functioning, Disability and Health, the World Health Organization described the impact of an individual's health condition on a significant other as "third-party disability." Recent research has described how third-party disability can occur in family members of people with aphasia post-stroke. Despite the extensive history and ongoing relevance of these findings, family-centered rehabilitation has been slow to integrate into clinical practice and policy. The aims of this article are (1) to provide an overview of third-party disability in family members of people with aphasia; (2) to consider how third-party disability can be addressed through family-centered care and to identify some of the barriers to family-centered care; and (3) to describe The Family Aphasia Measure of Life Impact (FAMLI), a tool for measuring third-party functioning and disability in family members of people with aphasia, identifying family rehabilitation needs, and measuring outcomes of family-centered care.
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Keyword:
1203 Language and Linguistics; 3310 Linguistics and Language; 3616 Speech and Hearing; aphasia; caregiver burden; family members; family-centered care; FAMLI; ICF; rehabilitation; stroke; third-party disability; third-party functioning
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URL: https://espace.library.uq.edu.au/view/UQ:544b6dd
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| 3 |
A core outcome set for aphasia treatment research: the ROMA consensus statement
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| 4 |
A core outcome set for aphasia treatment research: the ROMA consensus statement
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| 5 |
Perceived Benefits for Family Members of Group Participation by Their Relatives with Aphasia
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"We just thought that this was Christmas": perceived benefits of participating in aphasia, stroke, and other groups
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| 7 |
Goals and goal setting for people with aphasia, their family members and clinicians
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In: Research outputs 2014 to 2021 (2014)
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| 8 |
Goals and goal setting for people with aphasia, their family members and clinicians
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The World Report on disability as a blueprint for international, national, and local aphasia services.
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In: International journal of speech-language pathology, 15(1,): 106-112 (2013)
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| 14 |
Reflection on the benefits and limitations of participant-generated photography as an adjunct to qualitative interviews with participants with aphasia
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Third-party disability in family members of people with aphasia: a systematic review
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| 16 |
A qualitative investigation into third-party functioning and third-party disability in aphasia: Positive and negative experiences of family members of people with aphasia
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| 17 |
"Making a good time": the role of friendship in living successfully with aphasia
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| 18 |
The World Report on Disability as a blueprint for international, national, and local aphasia services
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