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Cortical microstructure in primary progressive aphasia: a multicenter study.
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In: Alzheimer's research & therapy, vol 14, iss 1 (2022)
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Protocol for the development of the international population registry for aphasia after stroke (I-PRAISE)
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In: Research outputs 2014 to 2021 (2022)
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An umbrella review of aphasia intervention description in research: The AsPIRE project
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In: Research outputs 2014 to 2021 (2022)
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Development and diagnostic validation of the Brisbane Evidence-Based Language Test
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In: Research outputs 2014 to 2021 (2022)
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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: The RELEASE database of aphasia after stroke
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Williams, Louise R.; Ali, Myzoon; VandenBerg, Kathryn; Williams, Linda J.; Abo, Masahiro; Becker, Frank; Bowen, Audrey; Brandenburg, Caitlin; Breitenstein, Caterina; Bruehl, Stefanie; Copland, David A.; Cranfill, Tamara B.; Di Pietro-Bachmann, Marie; Enderby, Pamela; Fillingham, Joanne; Galli, Federica Lucia; Gandolfi, Marialuisa; Glize, Bertrand; Godecke, Erin; Hawkins, Neil; Hilari, Katerina; Hinckley, Jacqueline; Horton, Simon; Howard, David; Jaecks, Petra; Jefferies, Elizabeth; Jesus, Luis M T; Kambanaros, Maria; Kang, Eun K; Khedr, Eman M; Kong, Anthony P H; Kukkonen, Tarja; Laganaro, Marina; Lambon Ralph, Matthew A; Laska, Ann C; Leemann, Béatrice; Leff, Alexander P; Lima, Roxele R; Lorenz, Antje; MacWhinney, Brian; Marshall, Rebecca S; Mattioli, Flavia; Maviş, İlknur; Meinzer, Marcus; Nilipour, Reza; Noé, Enrique; Paik, Nam-Jong; Palmer, Rebecca; Papathanasiou, Ilias; Patricio, Brigida F; Martins, Isabel P; Price, Cathy; Jakovac, Tatjana P; Rochon, Elizabeth; Rose, Miranda L; Rosso, Charlotte; Rubi-Fessen, Ilona; Ruiter, Marina B; Snell, Claerwen; Stahl, Benjamin; Szaflarski, Jerzy P; Thomas, Shirley A; Van De Sandt-Koenderman, Mieke; Van Der Meulen, Ineke; Visch-Brink, Evy; Worrall, Linda; Wright, Heather H; Brady, Marian C; The RELEASE Collaborators
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In: Research outputs 2014 to 2021 (2022)
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Abstract:
Background: Collation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. Aim: To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Methods: Data were collated by systematically identifying existing, eligible studies in any language ( ≥ 10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. Results: From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants’ median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Discussion: Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.
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Keyword:
aphasia; Health Information Technology; individual participant data; Medicine and Health Sciences; Public Health; rehabilitation reporting standards; speech and language therapy; Stroke
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URL: https://ro.ecu.edu.au/cgi/viewcontent.cgi?article=12374&context=ecuworkspost2013
https://ro.ecu.edu.au/ecuworkspost2013/11368
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Inter-rater reliability, intra-rater reliability and internal consistency of the Brisbane Evidence-Based Language Test
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In: Research outputs 2014 to 2021 (2022)
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Developing, monitoring, and reporting of fidelity in aphasia trials: Core recommendations from the collaboration of aphasia trialists (CATs) trials for aphasia panel
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In: Research outputs 2022 to 2026 (2022)
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An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
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In: Research outputs 2014 to 2021 (2022)
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Investigation of the implementation of a communication enhanced environment model on an acute/slow stream rehabilitation and a rehabilitation ward: A before-and-after pilot study
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In: Research outputs 2014 to 2021 (2022)
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Neuro-Oncology Patients as Human Research Subjects: Ethical Considerations for Cognitive and Behavioral Testing for Research Purposes
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In: Cancers; Volume 14; Issue 3; Pages: 692 (2022)
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A Preliminary Report of Network Electroencephalographic Measures in Primary Progressive Apraxia of Speech and Aphasia
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In: Brain Sciences; Volume 12; Issue 3; Pages: 378 (2022)
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Effect of Lexical-Semantic Cues during Real-Time Sentence Processing in Aphasia
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In: Brain Sciences; Volume 12; Issue 3; Pages: 312 (2022)
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Primary and Secondary Progressive Aphasia in Posterior Cortical Atrophy
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In: Life; Volume 12; Issue 5; Pages: 662 (2022)
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Imaging Clinical Subtypes and Associated Brain Networks in Alzheimer’s Disease
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In: Brain Sciences; Volume 12; Issue 2; Pages: 146 (2022)
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Benefits from Repetitive Transcranial Magnetic Stimulation in Post-Stroke Rehabilitation
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In: Journal of Clinical Medicine; Volume 11; Issue 8; Pages: 2149 (2022)
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Syntactic deficits in language comprehension in individuals with schizophrenia and Broca's aphasia ...
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Syntactic deficits in language comprehension in individuals with schizophrenia and Broca's aphasia ...
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The contribution of white matter pathology, hypoperfusion, lesion load, and stroke recurrence to language deficits following acute subcortical left hemisphere stroke ...
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A 'Mini Linguistic State Examination' to classify primary progressive aphasia. ...
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A 'Mini Linguistic State Examination' to classify primary progressive aphasia. ...
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