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Lived Experience of Dementia in the New Zealand Indian Community: A Qualitative Study With Family Care Givers and People Living With Dementia
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Family history of FXTAS is associated with age-related cognitive-linguistic decline among mothers with the FMR1 premutation.
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In: Journal of neurodevelopmental disorders, vol 14, iss 1 (2022)
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Cortical microstructure in primary progressive aphasia: a multicenter study.
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In: Alzheimer's research & therapy, vol 14, iss 1 (2022)
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Bilingualism, Dementia, and the Neurological Mechanisms in Between: The Need for a More Critical Look Into Dementia Subtypes ...
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Lee, Yan-Yi. - : Apollo - University of Cambridge Repository, 2022
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Anosognosia in Dementia: Evaluation of Perfusion Correlates Using 99mTc-HMPAO SPECT and Automated Brodmann Areas Analysis
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In: Diagnostics; Volume 12; Issue 5; Pages: 1136 (2022)
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Survival in Korean Patients with Frontotemporal Dementia Syndrome: Association with Behavioral Features and Parkinsonism
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In: Journal of Clinical Medicine; Volume 11; Issue 8; Pages: 2260 (2022)
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Semantic Feature Extraction Using SBERT for Dementia Detection
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In: Brain Sciences; Volume 12; Issue 2; Pages: 270 (2022)
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Changes in Pronoun Use a Decade before Clinical Diagnosis of Alzheimer’s Dementia—Linguistic Contexts Suggest Problems in Perspective-Taking
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In: Brain Sciences; Volume 12; Issue 1; Pages: 121 (2022)
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Determinants of Adherence to a “GRADIOR” Computer-Based Cognitive Training Program in People with Mild Cognitive Impairment (MCI) and Mild Dementia
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In: Journal of Clinical Medicine; Volume 11; Issue 6; Pages: 1714 (2022)
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Validation of the Visual Cognitive Assessment Test (VCAT) for the Early Diagnosis of Cognitive Impairment in Multilingual Population in Malaysia
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In: Psych; Volume 4; Issue 1; Pages: 38-48 (2022)
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The Understanding and Experiences of Living with Dementia in Chinese New Zealanders
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In: International Journal of Environmental Research and Public Health; Volume 19; Issue 3; Pages: 1280 (2022)
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Abstract:
Little is known about the lived experience of dementia in the New Zealand Chinese community. This study aims to explore the understanding and experiences of living with dementia in Chinese New Zealanders. Participants were recruited from a memory service and a community dementia day programme. In-depth interviews were conducted by bilingual and bicultural researchers. The recorded interviews were transcribed and thematically analysed. Sixteen people living with dementia and family carers participated in this study. The first theme revealed the lack of understanding of dementia prior to diagnosis, the commonly used term of “brain shrinkage” and that dementia is associated with getting older. The second theme covered the symptoms experienced by people with dementia and how family carers found anhedonia and apathy particularly concerning. The third theme highlighted the tension between cultural obligation and carer stress. The fourth theme is about the stigma attached to dementia. Our results provide some insight into ways to improve dementia care for Chinese New Zealanders, including targeted psychoeducation in the Chinese community to improve awareness and to reduce stigma, access to person-centred interventions, and learning about strategies for healthy ageing to live well with dementia, and emotional support and psychoeducation for family carers to reduce carer stress.
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Keyword:
Chinese; coping; dementia; health literacy; lived experience
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URL: https://doi.org/10.3390/ijerph19031280
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Lived Experience of Dementia in the New Zealand Indian Community: A Qualitative Study with Family Care Givers and People Living with Dementia
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In: International Journal of Environmental Research and Public Health; Volume 19; Issue 3; Pages: 1432 (2022)
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Pilotstudie zur parodontalen Gesundheit bei Patienten mit frontotemporaler Demenz ...
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A 'Mini Linguistic State Examination' to classify primary progressive aphasia. ...
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A 'Mini Linguistic State Examination' to classify primary progressive aphasia. ...
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Role of community health workers in addressing dementia: A global perspective
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Temporal cognition: subjective time and its connection with memory in frontotemporal dementia
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Liu, Lulu. - : The University of Sydney, 2022. : Faculty of Science, School of Psychology, 2022
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Improving the diagnostic accuracy of primary progressive aphasia using cognitive tests
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Foxe, David Gordon. - : The University of Sydney, 2022. : Faculty of Science, School of Psychology, 2022
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Primary Progressive Aphasia Associated With GRN Mutations: New Insights Into the Non-amyloid Logopenic Variant
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In: ISSN: 0028-3878 ; EISSN: 1526-632X ; Neurology ; https://hal.archives-ouvertes.fr/hal-03281660 ; Neurology, American Academy of Neurology, 2021, ⟨10.1212/wnl.0000000000012174⟩ (2021)
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Resting functional connectivity in the semantic appraisal network predicts accuracy of emotion identification.
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