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Randomised trial of a parent-mediated intervention for infants at high risk for autism: longitudinal outcomes to age 3 years. ...
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Evaluation of a Frequency-Lowering Algorithm for Adults With High-Frequency Hearing Loss. ...
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Improving food environments and tackling obesity: a realist systematic review of the policy success of regulatory interventions targeting population nutrition
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Randomised trial of a parent-mediated intervention for infants at high risk for autism: longitudinal outcomes to age 3 years.
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Determinants of living well With aphasia in the first year poststroke: a prospective cohort study
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CATALISE: a multinational and multidisciplinary Delphi consensus study. Identifying language impairments in children
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Core Outcomes and Common Data Elements in Chronic Subdural Hematoma: A Systematic Review of the Literature Focusing on Reported Outcomes.
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The Effect of a Care Transition Intervention on the Patient Experience of Older Multi-Lingual Adults in the Safety Net: Results of a Randomized Controlled Trial.
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In: Journal of general internal medicine, vol 30, iss 12 (2015)
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Establishment of a successful assessment and treatment service for Australian prison inmates with chronic hepatitis C
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In: Medical Journal of Australia (2015)
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Measurement invariance of English and French Health Education Impact Questionnaire (heiQ) empowerment scales validated for cancer
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The effects of Alberta Aphasia Camp on quality of life for people living with Aphasia
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The effects of Alberta Aphasia Camp on quality of life for people living with Aphasia
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Updating the OMERACT Filter: Implications for Patient-reported Outcomes
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In: ISSN: 0315-162X ; EISSN: 1499-2752 ; Journal of Rheumatology ; https://hal.univ-lorraine.fr/hal-01809372 ; Journal of Rheumatology, Journal of Rheumatology Publishing Company Limited, 2014, 41 (5), pp.1011 - 1015. ⟨10.3899/jrheum.131312⟩ (2014)
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A systematic review of the measurement properties of outcome measures used in aphasia treatment research ...
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A systematic review of the outcome measures used in aphasia treatment research ...
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Cross cultural adaptation and validation of a Spanish version of the lower limb functional index
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Updating the OMERACT filter: implications for patient-reported outcomes
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Kirwan, John R.; Bartlett, Susan J.; Beaton, Dorcas E.; Boers, Maarten; Bosworth, Ailsa; Brooks, Peter M.; Choy, Ernest; de Wit, Maarten; Guillemin, Francis; Hewlett, Sarah; Kvien, Tore K.; Landewe, Robert B.; Leong, Amye L.; Lyddiatt, Anne; March, Lyn; May, James; Montie, Pamela Lesley; Nikai, Enkeleida; Richards, Pam; Voshaar, Marieke M. J. H.; Smeets, Wilma; Strand, Vibeke; Tugwell, Peter; Gossec, Laure. - : Journal of Rheumatology Publishing Co, 2014
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Abstract:
At a previous Outcome Measures in Rheumatology (OMERACT) meeting, participants reflected on the underlying methods of patient-reported outcome (PRO) instrument development. The participants requested proposals for more explicit instrument development protocols that would contribute to an enhanced version of the "Truth" statement in the OMERACT Filter, a widely used guide for outcome validation. In the present OMERACT session, we explored to what extent these new Filter 2.0 proposals were practicable, feasible, and already being applied.Following overview presentations, discussion groups critically reviewed the extent to which case studies of current OMERACT Working Groups complied with or negated the proposed PRO development framework, whether these observations had a more general application, and what issues remained to be resolved.Several aspects of PRO development were recognized as particularly important, and the need to directly involve patients at every stage of an iterative PRO development program was endorsed. This included recognition that patients contribute as partners in the research and not merely as subjects. Correct communication of concepts with the words used in questionnaires was central to their performance as measuring instruments, and ensuring this understanding crossed cultural and linguistic boundaries was important in international studies or comparisons.Participants recognized, endorsed, and were generally already putting into practice the principles of PRO development presented in the plenary session. Further work is needed on some existing instruments and on establishing widespread good practice for working in close collaboration with patients.
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Keyword:
Outcome and process assessment; Patient-reported outcomes; Randomized controlled trials
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URL: https://espace.library.uq.edu.au/view/UQ:332003
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Evaluation of the Patient-Reported Outcomes Information System (PROMIS(®)) Spanish-language physical functioning items.
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In: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, vol 22, iss 7 (2013)
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General Movements in Very Preterm Children and Neurodevelopment at 2 and 4 Years
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