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Family history of FXTAS is associated with age-related cognitive-linguistic decline among mothers with the FMR1 premutation.
In: Journal of neurodevelopmental disorders, vol 14, iss 1 (2022)
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Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.
In: Developmental neurorehabilitation, vol 25, iss 2 (2022)
Abstract: There is a need for psychometrically sound outcome measures for treatment studies that have a low burden for families and that are available in multiple languages. We have developed a language assessment in English and Spanish that parents can administer to their children at home via telehealth-delivered procedures. The current case study presents descriptive data on a single family of two parent-child dyads. Both the mother and father from a single family were trained in their primary language (Spanish) on how to administer the Expressive Language Sampling - Narration (ELS-N) in their secondary language (English) to their two English-speaking monolingual sons with ASD through telehealth-delivered procedures. Both parents learned to administer the procedures to a predetermined level of fidelity. Extension to a larger sample of bilingual families is needed for this home-based, parent-administered test; however, the present results suggest feasibility even when the language of training and administration differ.
Keyword: Adolescent; ASD; Autism; Autism Spectrum Disorder; Behavioral and Social Science; Brain Disorders; Clinical Research; expressive language; Fathers; Female; Health Care; Humans; Intellectual and Developmental Disabilities (IDD); Male; Mental Health; Multilingualism; Neurosciences; Outcome Assessment; Paediatrics and Reproductive Medicine; parent training; Parents; Pediatric; Psychology; Rehabilitation; spanish; telehealth
URL: https://escholarship.org/uc/item/0gw5n84g
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3
Family history of FXTAS is associated with age-related cognitive-linguistic decline among mothers with the FMR1 premutation
In: J Neurodev Disord (2022)
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4
Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: Brief report
In: Dev Neurorehabil (2022)
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5
An Examination of Family Dynamics, Parental Responsivity, and Child Communication in Fragile X Syndrome
Potter, Sarah Nelson. - : eScholarship, University of California, 2021
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6
Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.
Del Hoyo Soriano, Laura; Bullard, Lauren; Thurman, Angela John. - : eScholarship, University of California, 2021
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7
Concurrent Associations between Expressive Language Ability and Independence in Adolescents and Adults with Fragile X Syndrome.
In: Brain sciences, vol 11, iss 9 (2021)
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8
Concurrent Associations between Expressive Language Ability and Independence in Adolescents and Adults with Fragile X Syndrome.
In: Brain sciences, vol 11, iss 9 (2021)
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9
Concurrent Associations between Expressive Language Ability and Independence in Adolescents and Adults with Fragile X Syndrome
In: Brain Sci (2021)
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10
Using telehealth-delivered procedures to collect a parent-implemented expressive language sampling narrative task in monolingual and bilingual families with Autism Spectrum Disorder: A pilot study
In: Front Rehabilit Sci (2021)
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11
Expressive language development in adolescents with Down syndrome and fragile X syndrome: change over time and the role of family-related factors.
In: Journal of neurodevelopmental disorders, vol 12, iss 1 (2020)
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12
Expressive language development in adolescents with Down syndrome and fragile X syndrome: change over time and the role of family-related factors.
In: Journal of neurodevelopmental disorders, vol 12, iss 1 (2020)
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13
A neurophysiological model of speech production deficits in fragile X syndrome.
In: Brain communications, vol 2, iss 1 (2020)
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14
The Relationship between Expressive Language Sampling and Clinical Measures in Fragile X Syndrome and Typical Development.
In: Brain sciences, vol 10, iss 2 (2020)
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15
Expressive language development in adolescents with Down syndrome and fragile X syndrome: change over time and the role of family-related factors
In: J Neurodev Disord (2020)
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16
Using Computerized Language Analysis to Evaluate Grammatical Skills
In: Lang Speech Hear Serv Sch (2020)
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17
The Relationship between Expressive Language Sampling and Clinical Measures in Fragile X Syndrome and Typical Development
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18
Syntactic Ability of Girls with Fragile X Syndrome: Phonological Memory and Discourse Demands on Complex Sentence Use
In: Am J Intellect Dev Disabil (2019)
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19
Estimates of the prevalence of speech and motor speech disorders in adolescents with Down syndrome
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20
A neurophysiological model of speech production deficits in fragile X syndrome
In: Brain Commun (2019)
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