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A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR-Befriending (SUPERB) for post-stroke aphasia
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions
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Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
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‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia
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"Loneliness can also kill:" a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others
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Hilari, K.; Flood, C.; Marshall, J.; Thomas, S.; Behn, N.; Simpson, A.; McVicker, S.; Monnelly, K.; Goldsmith, K.; Northcott, S.; Moss, B.. - : Taylor & Francis, 2021
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Abstract:
PURPOSE: People with aphasia post-stroke are at risk for depression and social isolation. Peer-befriending from someone with similar experiences may promote wellbeing and provide support. This paper explored the views of people with aphasia and their significant others about peer-befriending. MATERIALS AND METHODS: We conducted a qualitative study within a feasibility trial (SUPERB) on peer-befriending for people with post-stroke aphasia and low levels of distress. Of the 28 participants randomised to the intervention, semi-structured in-depth interviews were conducted with 10 purposively selected people with aphasia (at both 4- and 10-months post-randomisation) and five of their significant others (at 4-months). Interviews were analysed using Framework Analysis. RESULTS: Participants and their significant others were positive about peer-befriending and identified factors which influenced their experience: the befrienders' personal experience of stroke and aphasia, their character traits and the resulting rapport these created, the conversation topics they discussed and settings they met in, and the logistics of befriending, including planning visits and negotiating their end. Interviewees also made evaluative comments about the befriending scheme. CONCLUSION: Peer-befriending was an acceptable intervention. Benefits for emotional wellbeing and companionship were reported. The shared experience in the befriending relationship was highly valued. Implications for RehabilitationThe lived experience of stroke and aphasia of befrienders was highly valued by people with aphasia receiving peer-befriending. Training, regular supervision, and support for befrienders with practicalities such as organising visits ensured the befriending scheme was perceived as straightforward and acceptable by befriendees.Those receiving peer-befriending would recommend it to others; they found it beneficial, especially in terms of emotional wellbeing and companionship.
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Keyword:
P Philology. Linguistics; RT Nursing
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URL: https://openaccess.city.ac.uk/id/eprint/26360/ https://openaccess.city.ac.uk/id/eprint/26360/1/09638288.2021.pdf https://doi.org/10.1080/09638288.2021.1922519
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"For them and for me": a qualitative exploration of peer befrienders' experiences supporting people with aphasia in the SUPERB feasibility trial
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SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia
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Delivering group support for people with aphasia in a virtual world: experiences of service providers
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Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
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Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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In: Research outputs 2014 to 2021 (2021)
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial
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Adjustment with aphasia after stroke: a pilot feasibility randomised controlled trial for supporting wellbeing through peer-befriending (SUPERB)
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Treatment for improving discourse in aphasia: a systematic review and synthesis of the evidence base
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UK speech and language therapists’ views and reported practices of discourse analysis in aphasia rehabilitation
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Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
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