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A pilot economic evaluation of a feasibility trial for SUpporting wellbeing through PEeR-Befriending (SUPERB) for post-stroke aphasia
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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Intensive Comprehensive Aphasia Programmes: a systematic scoping review and analysis using the TIDieR checklist for reporting interventions
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Creating a theoretical framework to underpin discourse assessment and intervention in aphasia
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‘Emotion is of the essence. … Number one priority’: A nested qualitative study exploring psychosocial adjustment to stroke and aphasia
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"Loneliness can also kill:" a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others
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"For them and for me": a qualitative exploration of peer befrienders' experiences supporting people with aphasia in the SUPERB feasibility trial
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SUpporting wellbeing through PEeR-Befriending (SUPERB) feasibility trial: fidelity of peer-befriending for people with aphasia
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Delivering group support for people with aphasia in a virtual world: experiences of service providers
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Treatment fidelity of technology-enhanced reading therapy (CommuniCATE) for people with aphasia
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Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: A feasibility randomised controlled trial
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
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In: Research outputs 2014 to 2021 (2021)
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others ...
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“For them and for me”: a qualitative exploration of peer befrienders’ experiences supporting people with aphasia in the SUPERB feasibility trial
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Northcott, S.; Behn, N.; Monnelly, K.; Moss, B.; Marshall, J.; Thomas, S.; Simpson, A.; McVicker, S.; Flood, C.; Goldsmith, K.; Hilari, K.. - 2021
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Abstract:
Purpose: Peer-befriending, where support is offered by someone with shared lived experience, is an intervention that may facilitate successful adjustment in people experiencing post-stroke aphasia. This paper explores the experiences of the peer-befrienders. Materials and methods: People with aphasia were recruited as peer-befrienders within the SUPERB trial investigating befriending for people with post-stroke aphasia. The intervention comprised six visits over three months. Peer-befrienders were matched with at least one befriendee and received training and ongoing supervision. They were invited to participate in in-depth interviews which were analysed using framework analysis. Results: All 10 befrienders participated in interviews, reporting on 19 matches. Seven main themes emerged: content of the sessions; befriender–befriendee relationship; negotiating the visits; handling boundaries and endings; positive impact of the befriending for befrienders and befriendees; and beliefs about the nature and value of peer support. While befrienders described challenges, such as negotiating journeys and witnessing distress, the role was perceived as a “secure challenge” due to the support and training received. Conclusions: Befrienders perceived the role as enjoyable and rewarding, and felt they were making a positive difference. They were unanimous in believing that people with aphasia can offer unique and valuable support to others with aphasia. Trial registration: ClinicalTrials.gov identifier NCT02947776, registered 28th October 2016.Implications for rehabilitation People with lived experience of stroke and aphasia were able to offer emotional and social peer support to others with aphasia within the SUPERB trial. Although there were challenges, peer befrienders perceived the role as rewarding and satisfying. Peer befrienders valued the training and ongoing supervision and support they received to deliver the intervention. It is recommended that rehabilitation professionals considering offering peer-befriending schemes provide training and ongoing supervision to support peer-befrienders fulfil their role, as well as practical support with, e.g., arranging visits.
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URL: https://ueaeprints.uea.ac.uk/id/eprint/80123/1/Published_Version.pdf https://doi.org/10.1080/09638288.2021.1922520 https://ueaeprints.uea.ac.uk/id/eprint/80123/
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Adjustment with aphasia after stroke: a pilot feasibility randomised controlled trial for supporting wellbeing through peer-befriending (SUPERB)
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Treatment for improving discourse in aphasia: a systematic review and synthesis of the evidence base
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UK speech and language therapists’ views and reported practices of discourse analysis in aphasia rehabilitation
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Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
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