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An aphasia research agenda – a consensus statement from the collaboration of aphasia trialists
In: Research outputs 2014 to 2021 (2022)
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“There are endless areas that they can use it for”: speech-language pathologist perspectives of technology support for aphasia self-management ...
Nichol, Leana; Pitt, Rachelle; Wallace, Sarah J.. - : Taylor & Francis, 2022
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“There are endless areas that they can use it for”: speech-language pathologist perspectives of technology support for aphasia self-management ...
Nichol, Leana; Pitt, Rachelle; Wallace, Sarah J.. - : Taylor & Francis, 2022
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4
Core outcome set use in aphasia treatment research (Wallace et al., 2021) ...
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Core outcome set use in aphasia treatment research (Wallace et al., 2021) ...
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People with aphasia share their views on self-management and the role of technology to support self-management of aphasia ...
Nichol, Leana; Wallace, Sarah J.; Pitt, Rachelle. - : Taylor & Francis, 2021
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7
Prognostication in post-stroke aphasia: speech pathologists’ clinical insights on formulating and delivering information about recovery ...
Cheng, Bonnie B. Y.; Ryan, Brooke; Copland, David A.. - : Taylor & Francis, 2021
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8
People with aphasia share their views on self-management and the role of technology to support self-management of aphasia ...
Nichol, Leana; Wallace, Sarah J.; Pitt, Rachelle. - : Taylor & Francis, 2021
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9
Prognostication in post-stroke aphasia: speech pathologists’ clinical insights on formulating and delivering information about recovery ...
Cheng, Bonnie B. Y.; Ryan, Brooke; Copland, David A.. - : Taylor & Francis, 2021
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10
An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists.
In: Ali, Myzoon Soroli, Efstathia Jesus, Luis M. T. Cruice, Madeline Isaksen, Jytte Visch-Brink, Evy Grohmann, Kleanthes K. Jagoe, C. Kukkonen, Tarja Varlokosta, Spyridoula Hernández Sacristán, Carlos Rosell Clari, Vicent Palmer, Rebecca Martinez Ferreiro, Silvia Godecke, Erin Wallace, Sarah J. McMenamin, Ruth Copland, David Breitenstein, Caterina Bowen, Audrey Laska, Ann-Charlotte Hilari, Katerina Brady, Marian C. 2021 An aphasia research agenda - a consensus statement from the collaboration of aphasia trialists. Aphasiology 1 21 (2021)
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11
Many ways of measuring: a scoping review of measurement instruments for use with people with aphasia
Wallace, Sarah J.; Worrall, Linda; Le Dorze, Guylaine. - : Informa UK Limited, 2020
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12
Establishing consensus on a definition of aphasia: an e-Delphi study of international aphasia researchers
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13
Prognostication in post‐stroke aphasia: how do speech pathologists formulate and deliver information about recovery?
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14
A single, early aged care experience improves speech-language pathology students’ attitudes towards older people, communication confidence, and career aspirations in aged care
Wallace, Sarah J.; Mathew, Akhila; Mandrusiak, Allison. - : Taylor and Francis, 2020
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15
A core outcome set for aphasia treatment research: The ROMA consensus statement
In: Research outputs 2014 to 2021 (2019)
Abstract: BACKGROUND: A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the heterogeneous measurement of outcomes in aphasia treatment research and to facilitate the production of transparent, meaningful, and efficient outcome data. OBJECTIVE: The Research Outcome Measurement in Aphasia (ROMA) consensus statement provides evidence-based recommendations for the measurement of outcomes for adults with post-stroke aphasia within phases I-IV aphasia treatment studies. METHODS: This statement was informed by a four-year program of research, which comprised investigation of stakeholder-important outcomes using consensus processes, a scoping review of aphasia outcome measurement instruments, and an international consensus meeting. This paper provides an overview of this process and presents the results and recommendations arising from the international consensus meeting. RESULTS: Five essential outcome constructs were identified: Language, communication, patient-reported satisfaction with treatment and impact of treatment, emotional wellbeing, and quality of life. Consensus was reached for the following measurement instruments: Language: The Western Aphasia Battery Revised (WAB-R) (74% consensus); emotional wellbeing: General Health Questionnaire (GHQ)-12 (83% consensus); quality of life: Stroke and Aphasia Quality of Life Scale (SAQOL-39) (96% consensus). Consensus was unable to be reached for measures of communication (where multiple measures exist) or patient-reported satisfaction with treatment or impact of treatment (where no measures exist). DISCUSSION: Harmonization of the ROMA COS with other core outcome initiatives in stroke rehabilitation is discussed. Ongoing research and consensus processes are outlined. CONCLUSION: The WAB-R, GHQ-12, and SAQOL-39 are recommended to be routinely included within phases I-IV aphasia treatment studies. This consensus statement has been endorsed by the Collaboration of Aphasia Trialists, the British Aphasiology Society, the German Society for Aphasia Research and Therapy, and the Royal College of Speech Language Therapists.
Keyword: Aphasia; Communication Sciences and Disorders; consensus; core outcome set; methodology; recommendations; stroke
URL: https://ro.ecu.edu.au/ecuworkspost2013/5802
https://doi.org/10.1177/1747493018806200
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16
Current practice and barriers and facilitators to outcome measurement in aphasia rehabilitation: a cross-sectional study using the theoretical domains framework
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17
Family members’ experiences and preferences for receiving aphasia information during early phases in the continuum of care
Rose, Tanya A.; Wallace, Sarah J.; Leow, Sibin. - : Taylor and Francis, 2019
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18
A how-to guide to aphasia services: celebrating Professor Linda Worrall’s contribution to the field
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19
Beyond the statistics: a research agenda in aphasia awareness
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20
Self-management of aphasia: a scoping review
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