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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
Hersh, D.; Scarth, L.; Bannister, J.. - : Informa UK Limited, 2021
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Creating a novel approach to discourse treatment through coproduction with people with aphasia and speech and language therapists
In: Research outputs 2014 to 2021 (2021)
Abstract: Background: Although spoken discourse is an outcome prioritised by all stakeholders in aphasia rehabilitation, assessment and treatment of discourse are not routine clinical practice. The small evidence base, varied clinical expertise, multiple barriers in the workplace, and challenges for clients in understanding their altered language abilities all contribute to this situation. These factors need serious consideration when developing a new treatment. Involving intended stakeholders as partners in the development process is recommended. This assists with future implementation by ensuring assessment and treatment are practical, feasible, and acceptable to those who will deliver and undertake it. Aims: This paper reports on the coproduction phase of the Linguistic Underpinnings of Narrative in Aphasia (LUNA) research project and describes the levels of partners’ involvement, the outcomes and impact of coproduction, and the factors that influenced it. Methods and procedures: Four partners with aphasia and four speech and language therapists (SLTs) worked with academic team members across a 6-month period to create the LUNA assessment and treatment. Separate sessions were held with partners with aphasia (monthly) and SLTs (fortnightly). Coproduction methods included open discussion, the Someone Who Isn’t Me (SWIM) technique (thinking from others’ perspectives), low and high fidelity prototypes, flexible brainstorming, card sort, and active experimentation with assessment and treatment tasks. Verbal and written information was presented, shared and documented during each session in supportive formats, and each session summarised as accessible minutes. Outcomes and Results: Partners contributed at consultation, cooperation, and co-learning levels during the coproduction phase. Outcomes included joined-up thinking across assessment-goal setting-treatment-desired outcomes; agreed decisions and content for assessment protocol and treatment manual; clarity on personalised, meaningful, and relevant treatment; therapeutic alliance operationalised in treatment manual; and more. Impacts included increased confidence, self-knowledge, pride, validation, peer support, networking, and benefits to SLTs’ services. Coproduction was positively influenced by consistent session structure and conduct, group dynamics, accessible communication methods, active task experimentation, and SWIM technique. Although the process was time and labour intensive, all partners considered this worthwhile. Conclusions: LUNA has exemplified how an inclusive coproduction process can work well despite the language challenges of aphasia. Authors also believe that coproduction with intended users has resulted in products (assessment protocol, treatment manual) that are more practical, feasible, and acceptable to clinicians and clients than if designed by academics alone. This latter claim now needs testing on a wide scale.
Keyword: aphasia; assessment; Communication Sciences and Disorders; coproduction; discourse; Medicine and Health Sciences; treatment
URL: https://ro.ecu.edu.au/cgi/viewcontent.cgi?article=11696&context=ecuworkspost2013
https://ro.ecu.edu.au/ecuworkspost2013/10690
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3
Treatment for improving discourse in aphasia: a systematic review and synthesis of the evidence base
Dipper, L.; Marshall, J.; Boyle, M.. - : Informa UK Limited, 2020
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4
UK speech and language therapists’ views and reported practices of discourse analysis in aphasia rehabilitation
Cruice, M.; Botting, N.; Marshall, J.. - : Wiley, 2020
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5
Increasing the intensity and comprehensiveness of aphasia services: identification of key factors influencing implementation across six countries
Trebilcock, M.; Worrall, L.; Ryan, B.. - : Informa UK Limited, 2019
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6
Psychometric properties of discourse measures in aphasia: acceptability, reliability, and validity
Pritchard, M.; Hilari, K.; Cocks, Naomi. - : John Wiley & Sons Ltd., 2018
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7
Integration of speech and gesture in aphasia
Cocks, Naomi; Byrne, S.; Pritchard, M.. - : John Wiley & Sons Ltd., 2018
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8
Autobiographical memory in aphasia: an exploratory study
Pritchard, M.; Dipper, L.; Salis, C.. - : Informa UK Limited, 2018
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9
Integration of speech and gesture in aphasia
Cocks, N.; Byrne, S.; Pritchard, M.. - : Taylor & Francis, 2018
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10
How do speakers with and without aphasia use syntax and semantics across two discourse genres?
Walkden, E.; Dipper, L.; Cruice, M.. - : Taylor & Francis (Routledge), 2018
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11
Cultural adaptation and psychometric testing of The Scenario Test UK for people with aphasia
Hilari, K.; Galante, L.; Huck, Anneline. - : Taylor & Francis, 2018
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12
Psychometric properties of discourse measures in aphasia: acceptability, reliability, and validity
Pritchard, M.; Hilari, K.; Cocks, N.. - : Wiley, 2018
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13
Reviewing the quality of discourse information measures in aphasia
Pritchard, M.; Hilari, K.; Cocks, Naomi. - : John Wiley & Sons Ltd., 2017
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14
Reviewing the Quality of Discourse Information Measures in Aphasia
Pritchard, M.; Hilari, K.; Cocks, N.. - : Wiley, 2017
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15
Language and iconic gesture use in procedural discourse by speakers with aphasia
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16
The language–gesture connection: Evidence from aphasia
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17
The language-gesture connection: Evidence from aphasia
Morgan, G.; Dipper, L.; Cocks, N.. - : Taylor & Francis, 2015
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18
Language and Iconic Gesture Use in Procedural Discourse by Speakers with Aphasia
Morgan, G.; Dipper, L.; Pritchard, M.. - : Taylor & Francis (Routledge), 2015
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19
The benefits of a 5-day dysphagia intensive placement
Cocks, Naomi; Harding, C.; Pritchard, M.. - : Informa Healthcare, 2014
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20
The benefits of a 5-day dysphagia intensive placement
Cocks, N.; Harding, C.; Pritchard, M.. - : INFORMA HEALTHCARE, 2014
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