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Sign Language Recognition, Generation, and Translation: An Interdisciplinary Perspective
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In: The 21st International ACM SIGACCESS Conference on Computers and Accessibility ; https://hal.archives-ouvertes.fr/hal-02394580 ; The 21st International ACM SIGACCESS Conference on Computers and Accessibility, Oct 2019, Pittsburgh, United States (2019)
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Bilingual Cancer Genetic Education Modules for the Deaf Community: Development and Evaluation of the Online Video Material.
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In: Journal of genetic counseling, vol 27, iss 2 (2018)
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Bilingual cancer genetic education modules for the Deaf community: Development and evaluation of the online video material
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Abstract:
Health information about inherited forms of cancer and the role of family history in cancer risk for the American Sign Language (ASL) Deaf community, a linguistic and cultural community, needs improvement. Cancer genetic education materials available in English print format are not accessible for many sign language users because English is not their native or primary language. Per Center for Disease Control and Prevention recommendations, the level of literacy for printed health education materials should not be higher than 6(th) grade level (~11 to 12 years old), and even with this recommendation, printed materials are still not accessible to sign language users or other non-native English speakers. Genetic counseling is becoming an integral part of healthcare but often ASL users are not considered when health education materials are developed. As a result, there are few genetic counseling materials available in ASL. Online tools such as video and closed captioning offer opportunities for educators and genetic counselors to provide digital access to genetic information in ASL to the Deaf community. The Deaf Genetics Project team used a bilingual approach to develop a 37-minute interactive Cancer Genetics Education Module (CGEM) video in ASL with closed captions and quizzes, and demonstrated that this approach resulted in greater cancer genetic knowledge and increased intentions to obtain counseling or testing, compared to standard English text information (Palmer et al., 2017). Though visually enhanced educational materials have been developed for sign language users with multi-modal/lingual approach, little is known about design features that can accommodate a diverse audience of sign language users so the material is engaging to a wide audience. The main objectives of this paper are to describe the development of the CGEM and to determine if viewer demographic characteristics are associated with two measurable aspects of CGEM viewing behavior: 1) length of time spent viewing, and 2) number of pause, play, and seek events. These objectives are important to address, especially for Deaf individuals because the amount of simultaneous content (video, print) requires cross-modal cognitive processing of visual and textual materials. Use of technology and presentational strategies are needed that enhance, not interfere with health learning in this population.
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Keyword:
Article
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URL: http://www.ncbi.nlm.nih.gov/pubmed/29260487
https://doi.org/10.1007/s10897-017-0188-2
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC5860968/
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Bilingual approach to online cancer genetics education for deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study
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Impact of genetic counseling and Connexin-26 and Connexin-30 testing on deaf identity and comprehension of genetic test results in a sample of deaf adults: a prospective, longitudinal study.
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In: PloS one, vol 9, iss 11 (2014)
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Impact of Genetic Counseling and Connexin-26 and Connexin-30 Testing on Deaf Identity and Comprehension of Genetic Test Results in a Sample of Deaf Adults: A Prospective, Longitudinal Study
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Language and identity : a quantitative study of American Sign Language grammatical competency and deaf identity through on-line technology
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Deaf genetic testing and psychological well-being in deaf adults.
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In: Journal of genetic counseling, vol 22, iss 4 (2013)
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Deaf genetic testing and psychological well-being in deaf adults.
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In: Journal of genetic counseling, vol 22, iss 4 (2013)
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Using a social marketing framework to evaluate recruitment of a prospective study of genetic counseling and testing for the deaf community
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In: Kobayashi, Yoko; Boudreault, Patrick; Hill, Karin; Sinsheimer, Janet S; & Palmer, Christina GS. (2013). Using a social marketing framework to evaluate recruitment of a prospective study of genetic counseling and testing for the deaf community. BMC Medical Research Methodology, 13(1), 145. doi: http://dx.doi.org/10.1186/1471-2288-13-145. Retrieved from: http://www.escholarship.org/uc/item/9206w5wg (2013)
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Effect of pre-test genetic counseling for deaf adults on knowledge of genetic testing.
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In: Journal of genetic counseling, vol 21, iss 2 (2012)
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Effect of Pre-test Genetic Counseling for Deaf Adults on Knowledge of Genetic Testing
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Language and identity : a quantitative study of American Sign Language grammatical competency and deaf identity through on-line technology
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