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Core outcome set use in aphasia treatment research (Wallace et al., 2021) ...
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Core outcome set use in aphasia treatment research (Wallace et al., 2021) ...
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The Communication Research Registry: facilitating access to research experiences for people with a communication disability
Rose, Tanya; Waterson, Jessica; Caird, Emma. - : Taylor & Francis, 2020
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Many ways of measuring: a scoping review of measurement instruments for use with people with aphasia
Wallace, Sarah J.; Worrall, Linda; Le Dorze, Guylaine. - : Informa UK Limited, 2020
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Maximising allied health accessibility for Aboriginal and Torres Strait Islander children: exploring experiences and perceptions of a family-centred consultation model
Sargison, Helen; Fernandez, Yolanda; Marsh, Bonny. - : Taylor and Francis, 2020
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A core outcome set for aphasia treatment research: The ROMA consensus statement
In: Research outputs 2014 to 2021 (2019)
Abstract: BACKGROUND: A core outcome set (COS; an agreed, minimum set of outcomes) was needed to address the heterogeneous measurement of outcomes in aphasia treatment research and to facilitate the production of transparent, meaningful, and efficient outcome data. OBJECTIVE: The Research Outcome Measurement in Aphasia (ROMA) consensus statement provides evidence-based recommendations for the measurement of outcomes for adults with post-stroke aphasia within phases I-IV aphasia treatment studies. METHODS: This statement was informed by a four-year program of research, which comprised investigation of stakeholder-important outcomes using consensus processes, a scoping review of aphasia outcome measurement instruments, and an international consensus meeting. This paper provides an overview of this process and presents the results and recommendations arising from the international consensus meeting. RESULTS: Five essential outcome constructs were identified: Language, communication, patient-reported satisfaction with treatment and impact of treatment, emotional wellbeing, and quality of life. Consensus was reached for the following measurement instruments: Language: The Western Aphasia Battery Revised (WAB-R) (74% consensus); emotional wellbeing: General Health Questionnaire (GHQ)-12 (83% consensus); quality of life: Stroke and Aphasia Quality of Life Scale (SAQOL-39) (96% consensus). Consensus was unable to be reached for measures of communication (where multiple measures exist) or patient-reported satisfaction with treatment or impact of treatment (where no measures exist). DISCUSSION: Harmonization of the ROMA COS with other core outcome initiatives in stroke rehabilitation is discussed. Ongoing research and consensus processes are outlined. CONCLUSION: The WAB-R, GHQ-12, and SAQOL-39 are recommended to be routinely included within phases I-IV aphasia treatment studies. This consensus statement has been endorsed by the Collaboration of Aphasia Trialists, the British Aphasiology Society, the German Society for Aphasia Research and Therapy, and the Royal College of Speech Language Therapists.
Keyword: Aphasia; Communication Sciences and Disorders; consensus; core outcome set; methodology; recommendations; stroke
URL: https://ro.ecu.edu.au/ecuworkspost2013/5802
https://doi.org/10.1177/1747493018806200
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The functional communication classification system: extended reliability and concurrent validity for children with cerebral palsy aged 5 to 18 years
Caynes, Katy; Rose, Tanya A.; Theodoros, Deborah. - : Wiley-Blackwell Publishing, 2019
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Family members’ experiences and preferences for receiving aphasia information during early phases in the continuum of care
Rose, Tanya A.; Wallace, Sarah J.; Leow, Sibin. - : Taylor and Francis, 2019
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9
A how-to guide to aphasia services: celebrating Professor Linda Worrall’s contribution to the field
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10
Beyond the statistics: a research agenda in aphasia awareness
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11
The use and impact of a supported aphasia-friendly photo menu tool on iPads in the inpatient hospital setting: a pilot study
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12
Conversations between people with aphasia and speech pathology students via telepractice: a Phase II feasibility study
Finch, Emma; Lethlean, Jennifer; Rose, Tanya. - : John Wiley & Sons, 2019
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The It Takes Two to Talk® – The Hanen Program® for parents: impacts on child behaviour and social-emotional functioning
Rose, Tanya; Scarinci, Nerina; Meyer, Carly. - : Taylor & Francis, 2019
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Exploring the outcomes and perceptions of people with aphasia who conversed with speech pathology students via telepractice: a pilot study
Lee, Jeslyn J.; Finch, Emma; Rose, Tanya. - : Taylor & Francis, 2019
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15
A core outcome set for aphasia treatment research: the ROMA consensus statement
Wallace, Sarah J.; Worrall, Linda; Rose, Tanya. - : SAGE Publications, 2018
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A core outcome set for aphasia treatment research: the ROMA consensus statement
Wallace, Sarah J.; Worrall, Linda; Rose, Tanya. - : SAGE Publications, 2018
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Aphasia-friendly hospital meal menus for stroke patients: A pilot study exploring perceptions and behaviour change
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Family members’ experiences and preferences for receiving aphasia information during early phases in the continuum of care
Rose, Tanya A.; Wallace, Sarah J.. - : Routledge, 2018
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Aphasia education: speech-language pathologists’ perspectives regarding current and optimal practice
Rose, Tanya A.; Balse, Anita; Osmond, Sarah. - : Routledge, 2018
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A role for epistemic trust in speech-language pathology: A tutorial paper
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