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Caregiver Experiences of Feeding Instruction for Infants Born with Cleft Lip and/or Palate
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In: Masters Theses & Specialist Projects (2022)
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Abstract:
Purpose: The purpose of this study is to learn what feeding education was provided to caregivers of infants with cleft lip and/or palate and how they view the feeding experience. Method: Participants (n=5) were recruited from two Facebook support groups, Cleft Lip and Palate Support Group :*) and Cleft Mom Support. The data were collected using Qualtrics™ software. The questionnaire consisted of eight demographic questions and seven topic-specific questions. The demographic questions included the exclusion and inclusion criteria. The participants of this study were required to be an English-speaking parent or a caregiver of a child under one year of age with nonsyndromic cleft lip and/or palate. While six participants qualified, only five continued on to complete the topic-specific questions. Results: Eighty percent of participants reported receiving feeding education from a speech-language pathologist, and all reported being provided follow-up care in regard to feeding. Sixty percent of participants mentioned the use of specific bottles in regard to the feeding education they were provided. Sixty percent of participants described using Facebook support groups to acquire additional feeding information. Conclusion: This study confirms the importance of speech-language pathologists’ role in cranio-facial teams as providers of feeding therapy to infants born with cleft lip and/or palate, particularly as related to bottle training due to the large percentage of parents who listed it as a part of the feeding education provided by speech-language pathologists.
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Keyword:
caregiver education; cleft lip; cleft palate; Communication Sciences and Disorders; pediatric feeding; Speech Pathology and Audiology
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URL: https://digitalcommons.wku.edu/theses/3572 https://digitalcommons.wku.edu/cgi/viewcontent.cgi?article=4581&context=theses
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An iterative design for patient education handouts: creating accessible written pre-operative information for diverse cleft palate patients and their families
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In: Student Research Symposium (2021)
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PAX7, PAX9 and RYK Expression in Cleft Affected Tissue
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In: Medicina ; Volume 57 ; Issue 10 (2021)
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Enhanced Milieu Teaching with Phonological Emphasis: A Pilot Telepractice Parent Training Study for Toddlers with Clefts
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In: Children ; Volume 8 ; Issue 9 (2021)
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Quantifying changes in ultrasound tongue-shape pre- and post-intervention in speakers with submucous cleft palate: An illustrative case study
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Predictors of Velopharyngeal Insufficiency After Surgical Advancement of the Maxilla among Young Adults with Cleft Palate
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Association between speech and dental occlusion changes in children with cleft lip and palate and time of primary plastic surgeries
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In: Revista CEFAC, Vol 23, Iss 4 (2021) (2021)
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Prenatal ultrasound diagnosis of cleft palate without cleft lip, the new ultrasound semiology
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In: ISSN: 0197-3851 ; EISSN: 1097-0223 ; Prenatal Diagnosis ; https://hal.umontpellier.fr/hal-03592218 ; Prenatal Diagnosis, Wiley, 2020, 40 (11), pp.1447-1458. ⟨10.1002/pd.5794⟩ (2020)
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A Review on Detection of Nasalized Voiced Stops in Cleft Palate Speech ...
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A Review on Detection of Nasalized Voiced Stops in Cleft Palate Speech ...
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Three-Dimensional Morphological Changes of the True Cleft under Passive Presurgical Orthopaedics in Unilateral Cleft Lip and Palate: A Retrospective Cohort Study
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In: Journal of Clinical Medicine ; Volume 9 ; Issue 4 (2020)
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"Can You Understand Me Now?": The Use of Direct Magnitude Estimation Scales in Telepractice Speech Therapy with Clients with Repaired Cleft Palate
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Caution: BAPA in Progress: Using the Bilingual Articulation Phonology Assessment (BAPA) During Telepractice
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The impact of real-time articulatory information on phonetic transcription : ultrasound-aided transcription in cleft lip and palate speech
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Investigation of the Anatomical and Physiological Changes Following the Use of a Pedicled Buccal Fat Pad Graft During Primary Palatoplasty
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Non-Syndromic Cleft Lip with or without Cleft Palate: Genome-Wide Association Study in Europeans Identifies a Suggestive Risk Locus at 16p12.1 and Supports SH3PXD2A as a Clefting Susceptibility Gene
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In: Genes ; Volume 10 ; Issue 12 (2019)
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Speech and language phenotyping in children with cleft lip and/or palate and their unaffected relatives
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Tongue-palate contact for nasal versus oral stops in speakers with repaired cleft palate
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The impact of real-time articulatory information on phonetic transcription: Ultrasound-aided transcription in cleft lip and palate speech
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Feeding Infants with Cleft Lip and/or Palate
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In: http://rave.ohiolink.edu/etdc/view?acc_num=osu1543409768755871 (2018)
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