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Pneumonia's second wind? A case study of the global health network for childhood pneumonia.
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| 702 |
Enduring Patterns: Standard Language and Privileged Identities in the Writing Classroom.
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| 703 |
Health Expectations ; Biosamples as gifts? How participants in biobanking projects talk about donation
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Abstract:
Background In the UK, altruism has featured explicitly as an underpinning principle for biobanking. However, conceptualising donation as altruistic downplays the role of reciprocity and personal or family benefit. Objective To investigate how biosample donors talk about their donation, and whether they regard samples as ‘gifts’. Methods In this qualitative study, twenty-one people, both healthy volunteers and people with health conditions, who had been invited to give biosamples took part in semi-structured narrative interviews. The data were transcribed verbatim and thematically analysed. Results The term ‘gift’ was considered appropriate by some, but it also evoked puzzlement, especially in relation to ‘waste’ material (e.g. urine or tumour samples). Whilst ‘giving’ or ‘donating’ were commonly mentioned, the noun ‘gift’ signified something more special and deliberate. Analysis suggested biosamples could be interpreted as gifts in several different ways, including as: unreserved gift; reciprocal gift; collective gift; unwanted/low value gift; and gift as an exaggeration. Discussion and conclusions Although people describe a network of exchange consistent with anthropological understandings of gift relationships, lay (and biomedical) understandings of the term ‘gift’ may differ from anthropological definitions. For donors (and researchers), value is attached to the information derived from the sample, rather than the sample itself. Consequently, when asking people for biosamples we should avoid using the term ‘gift’. Acknowledging the value of participation and the information the sample holds may mean more to potential donors.
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Keyword:
alturism; gift relationship; patient experiences; qualitative research
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URL: https://doi.org/10.1111/hex.12376
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| 704 |
The empathetic researcher: applying research methods from anthropology to lis
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| 705 |
Structural Metaphor: An Exploration of the Subjective Experience of Psycho-analytic Essence
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| 706 |
The Bridging Education and Licensure of International Medical Doctors in Ontario: A Call for Commitment, Consistency, and Transparency
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| 707 |
Clinical Translation of Neuro-regenerative Medicine in India: A Study on Barriers and Strategies
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| 708 |
Mindfulness beyond the Third Wave: The Role of Mindfulness outside the Cognitive-behavioural Tradition
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