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Le "consentement éclairé", un mésaccord
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In: (Dé)saccords. A la recherche de la différence propice ; https://hal.u-pec.fr//hal-03462449 ; Pierluigi Basso Fossali. (Dé)saccords. A la recherche de la différence propice, AFS Editions, 2021, (Dés)accords. A la recherche de la différence propice ; http://afsemio.fr/publications/actes_congres/actes-congres-afs-2019/ (2021)
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What Motivates Parents to Continue a Pregnancy after a Life-Limiting Fetal Diagnosis: A Qualitative Study of Parents
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In: Advances in Pediatrics and Neonatal Care ; https://hal.archives-ouvertes.fr/hal-03125603 ; Advances in Pediatrics and Neonatal Care, Gavin Publishers, 2020, ⟨10.29011/APNC-114.100014⟩ (2020)
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Abstract:
International audience ; Context: Despite their painful context, the observations and recommendations of studies of perinatal professionals have shown the existence of institutional barriers to the performance of perinatal palliative care (PPC), sometimes linked to these professionals’ moral judgments. This may impede their communication with parents - presentation of management options and decisionmaking - and the concrete performance of PPC.Objective: This study analyzes the motives for which women or couples continue pregnancies after the diagnosis of a lifelimiting fetal disorder (LLFD).Methods: Qualitative study. Discourse analysis of internet posts written by parents on the internet forum of a parents’ association. Most families underlined the importance of spending time with their baby, of getting to know them during the pregnancy and if possible after their birth. These families’ priority is the opportunity to experience and fully exercise their parental responsibilities in making decisions for this unborn infant: showing a personal desire that, insofar as possible, their baby should not suffer and should be welcomed with love. Their child’s lifetime, often brief, is valued as a time of meeting and of love, whether in utero or after birth; they report they attribute little importance to its duration. Avoiding a decision to end the child’s life voluntarily, regardless of his or her prognosis for survival, is also decisive for many parents, even though they cannot prevent the baby’s death due to the disease. A minority mention that this decision is motivated by the hope of a prognosis that will be better than expected, or that the diagnosis will not be confirmed, or a singularly better individual outcome. These cases manifested more of an opening towards a positive surprise, than a lack of confidence in the medical prediction. Religion was not mentioned as an argument for choosing PPC in our study.Conclusion: Parental motivations to continue pregnancies diagnosed prenatally as LLFD are centered on the early bond with the unborn baby, the consideration of his or her full existence as a person, and the prevention of future regrets. These motivations do not appear to be related to religious beliefs or lack of confidence in medical diagnosis/prognosis, Parental duty and love move parents towards this decision. Perinatal professionals should acknowledge these motivations to better understand parental choice and support them.
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Keyword:
[SHS.INFO]Humanities and Social Sciences/Library and information sciences; [SHS.LANGUE]Humanities and Social Sciences/Linguistics
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URL: https://doi.org/10.29011/APNC-114.100014 https://hal.archives-ouvertes.fr/hal-03125603
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Les mots en discours : du sémantique au sémiologique
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In: ISSN: 0255-674X ; EISSN: 2718-0042 ; Dilbilim - Journal of Linguistics ; https://hal-upec-upem.archives-ouvertes.fr/hal-02024061 ; Dilbilim - Journal of Linguistics, Edebiyat Fakültesi Basimevi Istanbul - Istanbul University, 2018, XXXII (CILT 2/Volume 2), pp.59-75 (2018)
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Le texte de la glose, de l'énonciation au discours
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In: Texte et discours en confrontation dans l'espace européen ; https://hal-upec-upem.archives-ouvertes.fr/hal-01899808 ; Driss Ablali, Guy Achard-Bayle, Sandrine Reboul-Touré, Malika Temmar. Texte et discours en confrontation dans l'espace européen, Peter Lang, pp.83-97, 2018, 978-3-0343-2661-2 ; https://www.peterlang.com/view/9783034326612/chapter-004.xhtml (2018)
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De Culioli à Saussure, aller-retour
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In: ISSN: 0750-8069 ; EISSN: 1638-1580 ; Histoire Epistémologie Langage ; https://hal-upec-upem.archives-ouvertes.fr/hal-01833616 ; Histoire Epistémologie Langage, SHESL/EDP Sciences, 2018, Représentations et opérations dans le langage : Saussure, Bally, Guillaume, Benveniste, Culioli, 40 (1), pp.81-93. ⟨10.1051/hel/e2018-80007-9⟩ ; https://www.hel-journal.org/ (2018)
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Notes against notes. Reconstructions and meanderings of a reader and hearer of Antoine Culioli ; Notes contre notes. Retours et détours d’un lecteur et auditeur d’Antoine Culioli
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In: ISSN: 0458-726X ; EISSN: 1958-9549 ; Langages ; https://hal-upec-upem.archives-ouvertes.fr/hal-01738071 ; Langages, Armand Colin (Larousse jusqu'en 2003), 2018, Le cours de linguistique. Formes, genèses et interprétations de notes d'auditeurs ; http://www.revues.armand-colin.com/lettres-langues/langages/langages-ndeg-209-12018/notes-contre-notes-retours-detours-dun-lecteur-auditeur-dantoine-culioli (2018)
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Notes contre notes. Retours et détours d’un lecteur et auditeur d’Antoine Culioli
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In: Langages, N 209, 1, 2018-03-20, pp.97-114 (2018)
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L'histoire d'un "truc"
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In: ISSN: 2118-9692 ; EISSN: 0246-8743 ; Linx ; https://hal-upec-upem.archives-ouvertes.fr/hal-01611047 ; Linx, Presses Universitaires de Paris Nanterre, 2017, Claudine Normand, une vie dans le langage, pp.17-38. ⟨10.4000/linx.1702⟩ (2017)
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Language and the game of chess
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In: ISSN: 0037-1998 ; EISSN: 1613-3692 ; Semiotica ; https://hal-upec-upem.archives-ouvertes.fr/hal-01610993 ; Semiotica, De Gruyter, 2017, A. J. Greimas - Life and semiotics, pp.199-217. ⟨10.1515/sem-2016-0201⟩ (2017)
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The social division of language: the fiction of popular language ; La division sociale de la langue: la fiction d'une langue populaire
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In: ISSN: 1678-8931 ; Revista Virtual de Estudos da Linguagem - ReVEL ; https://hal-upec-upem.archives-ouvertes.fr/hal-01421775 ; Revista Virtual de Estudos da Linguagem - ReVEL, Gabriel de Ávila Othero, 2016, Discourses and Social Inequalities, 24 (3), ⟨10.17851/2237-2083.26.3.789-814⟩ ; http://periodicos.letras.ufmg.br/index.php/relin/index (2016)
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Le cours d’énonciation
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In: L’énonciation aujourd'hui, un concept clé des Sciences du langage Limoges ; https://hal-upec-upem.archives-ouvertes.fr/hal-01360518 ; Marion Colas-Blaise; Laurent Perrin; Gian Maria Torre. L’énonciation aujourd'hui, un concept clé des Sciences du langage Limoges, Lambert-Lucas, pp. 151-166, 2016 (2016)
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La formalisation dans la théorie des opérations énonciatives : formes, formules, schémas
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In: ISSN: 2610-3745 ; Dossiers d'HEL ; https://hal.archives-ouvertes.fr/hal-01304863 ; Dossiers d'HEL, SHESL, 2016, Écriture(s) et représentations du langage et des langues, 9, pp.113-122 ; http://shesl.org/index.php/dossier9-ecritures-et-representations/ (2016)
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Langage et monnaie. Valeur et référence
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In: Valeurs. Au fondement de la sémiotique, Amir Biglari dir. ; https://hal.u-pec.fr//hal-02613251 ; Valeurs. Au fondement de la sémiotique, Amir Biglari dir., L'Harmattan, 2015 (2015)
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Une "sémantique de l'énonciation", sans doute
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In: La sémantique et ses interfaces ; https://hal-upec-upem.archives-ouvertes.fr/hal-01114466 ; Alain Rabatel, Alice Ferrara-Léturgie, Arnaud Léturgie. La sémantique et ses interfaces, Lambert-Lucas, 2015, 978-2-35935-129-3 (2015)
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Dixit, dicitur, dictum : à propos des "Phrases sans texte"
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In: Analyse du discours et dispositifs d’énonciation. Autour des travaux de Dominique Maingueneau ; https://hal-upec-upem.archives-ouvertes.fr/hal-01155001 ; Johannes Angermuller et Gilles Philippe. Analyse du discours et dispositifs d’énonciation. Autour des travaux de Dominique Maingueneau, Lambert-Lucas, 2015 (2015)
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De deux discours l'un. Phénoménologie de l'existence et sémiotique de la présence
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In: ISSN: 2281-9177 ; Metodo. International Studies in Phenomenology and Philosophy ; https://hal-upec-upem.archives-ouvertes.fr/hal-01160293 ; Metodo. International Studies in Phenomenology and Philosophy, Metodo Associazione, 2015, Phenomenology and Semiotics. Crossing Perspectives, 3, pp.Vol.3, n.1 ; http://metodo-rivista.eu/index.php/metodo/issue/view/12/showToc (2015)
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Théories de la fréquence linguistique et interprétations des faits quantitatifs en linguistique
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In: Documents, textes, oeuvres -- perspectives sémiotiques ; https://halshs.archives-ouvertes.fr/halshs-01108048 ; Ablali, Driss; Badir, Sémir; Ducard, Dominique. Documents, textes, oeuvres -- perspectives sémiotiques, Presses Universitaires de Rennes, pp.57-73, 2014, 978-2-7535-3492-6 (2014)
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Documents, textes, oeuvres ; Documents, textes, oeuvres: Perspectives sémiotiques
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In: Textes, œuvres, documents ; https://hal-upec-upem.archives-ouvertes.fr/hal-01114433 ; Textes, œuvres, documents, France. Presses universitaires de Rennes, 2014, Rivages linguistiques, 978-2-7535-3492-6 (2014)
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Rendre la parole: du reportage radiophonique à la fiction documentaire ; Dar a palavra : da reportagem radiofônica à ficção documental
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In: https://hal-upec-upem.archives-ouvertes.fr/hal-01160849 ; 2014 (2014)
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