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41
Electronic health records: new opportunities for clinical research.
In: J Intern Med , 274 (6) 547 - 560. (2013) (2013)
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42
Informed Consent Forms in Oncology Research: Linguistic Tools Identify Recurrent Pitfalls
In: ISSN: 2150-7724 ; AJOB Primary Research, Vol. 4, No 4 (2013) pp. 39-54 (2013)
Abstract: Background: Understanding of informed consent forms (ICFs) for clinical research remains insufficient despite attempts to simplify them. Through linguistic discourse analysis, we sought to identify pitfalls within the text of ICFs that could hinder readers' understanding of participation in research. Methods: We conducted a linguistic discourse analysis on a qualitative sample of 19 ICFs approved by research ethics committees (RECs) for oncology protocols and explored whether our findings also applied to standard U.S. documents available online. Results: We identified five major categories of language patterns that were problematic with respect to ensuring informed consent. We categorized them as follows: “bypassing consent,” “seeker–supplier inversion,” “interlocking Russian dolls,” “vanishing author,” and “one size fits all.” At least one instance of these findings existed in all analyzed forms (median 10 per ICF, range 1–18) and in national templates and U.S. documents. Conclusions: Linguistic discourse analysis identified recurrent pitfalls in the language of REC-approved ICFs and templates. This approach may provide new tools to improve ICFs.
Keyword: Biomedical research; Consent forms; info:eu-repo/classification/ddc/410; Informed consent; Linguistics; Research ethics; Research ethics committees
URL: https://archive-ouverte.unige.ch/unige:32034
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43
Language in genetics research informed consent: The language gap and unrecognized miscommunication
In: Electronic Thesis and Dissertation Repository (2013)
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44
Ethics and social media: implications for sociolinguistics in the networked public
In: Journal of sociolinguistics. - Oxford [u.a.] : Blackwell 16 (2012) 4, 532-546
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OLC Linguistik
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45
Redesigning informed consent tools for specific research
In: Technical communication quarterly. - Mahwah, NJ : Erlbaum 21 (2012) 2, 145-167
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OLC Linguistik
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46
Getting language rights right: a response to Makoni
In: Journal of multicultural discourses. - London [u.a.] : Routledge 7 (2012) 1, 29-35
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OLC Linguistik
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47
Contesting hegemonic and monolithic constructions of language rights 'discourse'
In: Journal of multicultural discourses. - London [u.a.] : Routledge 7 (2012) 1, 21-27
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OLC Linguistik
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48
Language and human rights discourses in Africa: lessons from the African experience
In: Journal of multicultural discourses. - London [u.a.] : Routledge 7 (2012) 1, 1-20
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OLC Linguistik
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49
Handbook of descriptive linguistic fieldwork. By Shobhana L. Chelliah and Willem J. de Reuse. Dordrecht: Springer, 2011. Pp. XX, 492 [Rezension]
In: Language. - Washington, DC : Linguistic Society of America 88 (2012) 4, 899-904
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50
Ethics in praxis: negotiating the presence and functions of a video camera in family therapy
In: Discourse studies. - London [u.a.] : Sage 14 (2012) 6, 675-690
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OLC Linguistik
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51
Corpus linguistics : method, theory and practice
Hardie, Andrew; McEnery, Tony. - Cambridge [u.a.] : Cambridge Univ. Press, 2012
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UB Frankfurt Linguistik
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52
The Oxford handbook of linguistic fieldwork
Thieberger, Nick (Hrsg.). - Oxford [u.a.] : Oxford Univ. Press, 2012
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Institut für Empirische Sprachwissenschaft
UB Frankfurt Linguistik
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53
La linguistique de terrain, méthode et théorie : une approche ethnosociolinguistique de la complexité
Blanchet, Philippe. - Rennes : Presses Univ. de Rennes, 2012
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UB Frankfurt Linguistik
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54
Evaluating quality and excellence in translation studies research : publish or perish, the Spanish way
In: Babel. - Amsterdam : Benjamins 58 (2012) 3, 264-288
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OLC Linguistik
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55
Le paradoxe du linguiste
In: Linguistica. - Ljubljana 52 (2012), 393-402
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56
Constituting Moral Orders A Situational Analysis of US Military Veterans' Public Testimony Against War
Spring, Kimberly A.. - : New School University, 2012
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57
What if You Talked to Me? I Could Be Interesting! Ethical Research Considerations in Engaging with Bilingual / Multilingual Child Participants in Human Inquiry
In: Forum Qualitative Sozialforschung / Forum: Qualitative Social Research ; 6 ; 1 (2012)
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58
Erforschung des Lehrens und Lernens fremder Sprachen: Forschungsethik, Forschungsmethodik und Politik : Arbeitspapiere der 31. Frühjahrskonferenz zur Erforschung des Fremdsprachenunterrichts
Königs, Frank G. (Hrsg.); Burwitz-Melzer, Eva (Hrsg.); Bausch, Karl-Richard (Hrsg.). - Tübingen : Narr Verl., 2011
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UB Frankfurt Linguistik
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59
Handbook of descriptive linguistic fieldwork
Chelliah, Shobhana Lakshmi; Reuse, Willem J. de. - Dordrecht [u.a.] : Springer, 2011
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UB Frankfurt Linguistik
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60
Qualitative communication research methods
Taylor, Bryan C.; Lindlof, Thomas R.. - London [u.a.] : SAGE, 2011
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UB Frankfurt Linguistik
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