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Development of a standard of care for patients with valosin-containing protein associated multisystem proteinopathy.
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In: Orphanet journal of rare diseases, vol 17, iss 1 (2022)
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Towards equitable and trustworthy genomics research. ...
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Abstract:
Funder: National Institutes of Health ... : The representation of traditionally scientifically underserved groups in genomic research continues to be low despite concerns about equity and social justice and the scientific and clinical need. Among the factors that account for this are a lack of trust in the research community and limited diversity in this community. The success of the multiple initiatives that aim to improve representation relies on the willingness of underrepresented populations to make data and samples available for research and clinical use. In this narrative review, we propose that this requires building trust, and set out four approaches to demonstrating trustworthiness, including increasing diversity in the research workforce, and meaningful engagement with underrepresented communities in a culturally and linguistically appropriate manner. Capacity building globally will ensure that actual and perceived exploitation and 'helicopter' research could be eliminated. ...
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Keyword:
Diversity; Equity; Genomics Research; inclusion; Justice
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URL: https://www.repository.cam.ac.uk/handle/1810/335202 https://dx.doi.org/10.17863/cam.82632
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International Faculty's Perspectives on Organizational Culture and Management: A Three-Step Action Plan ...
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International Faculty's Perspectives on Organizational Culture and Management: A Three-Step Action Plan ...
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Proceedings of the International Conference on "Minority languages spoken or signed and inclusive spaces" ...
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Proceedings of the International Conference on "Minority languages spoken or signed and inclusive spaces" ...
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Members of the Polish Language Council on the Problems of Linguistic Diversity and Linguistic Inclusion in Poland
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In: Social Inclusion ; 9 ; 1 ; 63-74 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Towards Inclusion in Spanish Higher Education: Understanding the Relationship between Identification and Discrimination
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In: Social Inclusion ; 9 ; 3 ; 81-93 ; Inclusive Universities in a Globalized World (2022)
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Social Inclusion and Multilingualism: Linguistic Justice and Language Policy
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In: Social Inclusion ; 9 ; 1 ; 1-4 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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What Constitutes a Local Public Sphere? Building a Monitoring Framework for Comparative Analysis
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In: Media and Communication ; 9 ; 3 ; 85-96 ; Spaces, Places, and Geographies of Public Spheres (2022)
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Two Linguas Francas? Social Inclusion through English and Esperanto
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In: Social Inclusion ; 9 ; 1 ; 75-84 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Relational Communication Spaces: Infrastructures and Discursive Practices
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In: Media and Communication ; 9 ; 3 ; 28-39 ; Spaces, Places, and Geographies of Public Spheres (2022)
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Multilingualism and Social Inclusion in Scotland: Language Options and Ligatures of the "1+2 Language Approach"
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In: Social Inclusion ; 9 ; 1 ; 14-23 ; Social Inclusion and Multilingualism: The Impact of Linguistic Justice, Economy of Language and Language Policy (2022)
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Towards Portuguese Sign Language Identification Using Deep Learning
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CLIL as an inclusive approach. a didactic proposal to attend to diversity
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Understanding cyberslacking intention during Covid-19 online classes: An fsQCA analysis
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How can we recruit more men of African or African-Caribbean ancestry into our research? Co-creating a video to raise awareness of prostate cancer risk and the PROFILE study
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La inclusividad lingüística en la educación multilingüe de California: coexistencia de las variedades y registros de lengua para enriquecer el aula de inmersión dual
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Effects of Social Stories on Increasing Social Interaction and Engagement of Deaf and Hard of Hearing Students with Autism Spectrum Disorder in Inclusive Settings
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In: UNF Faculty Publications (2022)
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Welcoming and Inclusive Farmers Markets: A Community of Practice to Encourage Diversity, Equity, and Inclusion
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In: Outcomes and Impact Quarterly (2022)
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