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The Communication Research Registry: facilitating access to research experiences for people with a communication disability
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Combating social isolation for people with severe chronic aphasia through community aphasia groups: consumer views on getting it right and wrong
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Impact of voice and communication deficits for individuals with cervical spinal cord injury living in the community
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The development and accuracy testing of CommFit™, an iPhone application for individuals with aphasia
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Preliminary psychometric analyses of two assessment measures quantifying communicative and social activities: the COMACT and SOCACT
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Assessing in-class participation for EFL: considerations of effectiveness and fairness for different learning styles
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Mobile computing technology and aphasia: an integrated review of accessibility and potential uses
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What do people with aphasia think about their health care? Factors influencing satisfaction and dissatisfaction
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Abstract:
Background: Patient experience and satisfaction play an integral role in driving and directing quality improvement in health care. Although there is an increasing body of literature examining patient satisfaction with health careincluding that of stroke patientsfew studies have sought to capture the views of patients with aphasia. As a result, the experiences and opinions of people with aphasia on this subject remain unheard. In order to evaluate and improve health care for people with aphasia, there is a need to explore their experiences and resulting levels of satisfaction or dissatisfaction with their health care. Aims: This study aimed to explore the factors influencing the satisfaction and dissatisfaction of people with aphasia with regards to their health care. Methods & Procedures: A qualitative, descriptive phenomenological research approach was used. Semi-structured in-depth interviews with 50 participants with aphasia were analysed using qualitative content analysis to identify both categories and themes of health-care satisfaction. Outcomes & Results: Seven categories (areas of care) were identified as influencing participant satisfaction and dissatisfaction: (1) Forming Relationships; (2) Manner and Methods of Service Delivery; (3) Information, Communication and Knowledge; (4) Structure and Relevance of Therapy; (5) Organisational Management; (6) Individual Support; and (7) Positivity and Improvement. In addition, three core themes (described as Information and Communication, Dignity and Respect, and Control and Independence) and two secondary themes (Trust and Support and Understanding) were identified as being overarching areas of influence, appearing across the seven areas of care. Conclusions: This study has identified specific factors and values contributing to the satisfaction and dissatisfaction of people with aphasia with their health care. The findings may enable health providers to better understand the needs of people with aphasia and to implement appropriate improvements to health care and service delivery.
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Keyword:
1203 Language and Linguistics; 2728 Clinical Neurology; 2733 Otorhinolaryngology; 2808 Neurology; 2912 LPN and LVN; 3204 Developmental and Educational Psychology; 3310 Linguistics and Language; Access; Adults; Aphasia; Consumer satisfaction; Environmental-factors; Health-care outcomes; Information; Life; Participation; Patient satisfaction; Quality; Rehabilitation; Stroke; Stroke patients
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URL: https://espace.library.uq.edu.au/view/UQ:308082
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Membership-in-action: Operative identities in a family meal
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International classification of functioning, disability, and health core sets for hearing loss: A discussion paper and invitation
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Scaling voice activity limitation and participation restriction in dysphonic individuals
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