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Preliminary outcomes from a pilot study of personalised online supported conversation for participation intervention for people with Aphasia
Cruice, M.; Woolf, C.; Caute, A.; Monnelly, K.; Wilson, S.; Marshall, J.. - : Informa UK Limited, 2020
Abstract: Background: Aphasia negatively impacts face-to-face social participation and the difficulties that people experience using the phone exacerbate these challenges in staying in touch with family and friends. Videoconferencing enables multimodal communication, and teamed with supported conversation, could facilitate access to conversation and thereby increase social participation for people with chronic aphasia. Aims: This pilot study examined whether supported conversation provided over Skype could improve people’s social participation. It reports on preliminary outcomes of this intervention on people’s social network, communication confidence, aphasia-related quality of life, and mood. Methods & Procedures: 29 participants with chronic aphasia received an initial 2-h technology training session followed by 16 h of online-supportedThe intervention was personalised by individualising goals in technology, communication, and participation. An observational prospective cohort study design was used with baseline, immediately post-intervention, and 8-week follow-up assessments. Measures of social network and communication confidence (primary outcome measures), and aphasia-related quality of life, life participation, and mood (secondary outcome measures) were undertaken. Shapiro-Wilk tests were conducted to examine normality of distribution of each variable. Where data were normally distributed, one-way repeated-measures ANOVAs were used to examine the effect of time. Where data were not normally distributed, Wilcoxon Signed Ranks test was used. Outcomes & Results: 27 participants completed the intervention. As a group, participants reported significantly more social contacts, more life participation, and higher aphasia-related quality of life post-intervention, which were maintained. There was a group gain on the measure of communication confidence post-intervention, although this was not maintained. As a group, the participants’ mood did not significantly change through intervention and follow-up. Individual variability was noted across all outcome measures. Conclusions: These preliminary findings suggest that relatively low dose and non-intensive online supported conversation for participation intervention delivered by qualified or student speech and language therapists improved social participation in some people with aphasia and improved their quality of life. Communication confidence also improved for some, although benefits were short term. Findings make novel contributions to the existing supported conversation evidence base with positive social participation and quality of life outcomes, likely achieved by the explicit participation focus. Whilst preliminary findings are positive, study limitations need addressing. Further investigations are merited to refine the intervention and outcome measure choice and capture feasibility data. Finally, a definitive controlled trial is needed to explore the clinical efficacy and cost-effectiveness.
Keyword: P Philology. Linguistics; QA75 Electronic computers. Computer science; RC Internal medicine
URL: https://openaccess.city.ac.uk/id/eprint/24611/
https://openaccess.city.ac.uk/id/eprint/24611/1/ilovepdf_merged.pdf
https://doi.org/10.1080/02687038.2020.1795076
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2
CreaTable Content and Tangible Interaction in Aphasia
Cruice, M.; Neate, T.; Marshall, J.. - : ACM, 2020
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3
A Randomised Trial of Social Support Group Intervention for People with Aphasia: A Novel Application of Virtual Reality
Marshall, J.; Devane, N.; Talbot, R.. - : Public Library of Science (PLoS), 2020
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4
Empowering Expression for Users with Aphasia through Constrained Creativity
Neate, T.; Roper, A.; Wilson, S.. - : ACM, 2019
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5
Technology-Enhanced Reading Therapy for People With Aphasia: Findings From a Quasirandomized Waitlist Controlled Study.
Caute, A.; Woolf, C.; Wilson, S.. - : AMER SPEECH-LANGUAGE-HEARING ASSOC, 2019
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6
Co-Created Personas: Engaging and Empowering Users with Diverse Needs Within the Design Process
Neate, T.; Bourazeri, K.; Roper, A.. - : ACM, 2019
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7
Speech and Language
Roper, A.; Wilson, S.; Neate, T.. - : Springer, 2019
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8
Usability Testing – An Aphasia Perspective
Roper, A.; Davey, I.; Wilson, S.. - : ACM, 2018
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9
Social networking sites: barriers and facilitators to access for people with aphasia
Roper, A.; Grellmann, B.; Neate, T.. - : Taylor & Francis (Routledge), 2018
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10
Delivering word retrieval therapies for people with aphasia in a virtual communication environment
Wilson, S.; Woolf, C.; Talbot, R.. - : Taylor & Francis (Routledge), 2018
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11
Investigating Mobile Accessibility Guidance for People with Aphasia
Grellmann, B.; Neate, T.; Roper, A.. - : ACM, 2018
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12
Benefits and Limitations of Computer Gesture Therapy for the Rehabilitation of Severe Aphasia
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13
Evaluating the Benefits of Aphasia Intervention Delivered in Virtual Reality: Results of a Quasi-Randomised Study
Marshall, J.; Booth, T.; Devane, N.. - : Public Library of Science, 2016
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14
Computer delivery of gesture therapy for people with severe aphasia
Galliers, J. R.; Marshall, J.; Cocks, N.. - : Taylor & Francis, 2013
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15
Words are not enough: Empowering people with aphasia in the design process
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16
Accessibility of 3D Game Environments for People with Aphasia: An Exploratory Study
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